Lifeways is a unique cohort study, designed to capture Irish longitudinal life-course data, by recruiting three generations of the same family. Participants, who are essentially well at baseline, are followed up over time. As outcomes or diseases slowly develop, baseline data are then analysed to identify lifestyle, socio-economic and health service factors, which are associated with these outcomes. **Purpose:** The Lifeways Cross-Generation Cohort Study was established to assess the influence of socio-economic, lifestyle, cross-generational and health service factors associated with health and development, and contains data on mothers, fathers, children, and grandparents. **Coverage:** As of Mar 2022 1,133 families have been involved, recruited from the Dublin and Galway City catchment areas. Study data is available on 1,133 mothers, 1,114 children, 505 fathers and 1,604 grandparents. Data collection commenced in 2001 with gone through multiple rounds of collection and is currentl
Data is collected from a variety of sources including questionnaires, electronic ante-natal and birth records; immunisation records from HSE; child and adult health records; GP note searches; analysis of clinical samples. Follow-up rounds of data collection are performed at key developmental points: during pregnancy, Child aged 0, aged 3/year 4, aged 5/year 6, aged 9/10, with a year 20-21 follow-up planned. A scientific newsletter was sent to 777 families in January 2022.
Principal source of data and information on fatal and injury collisions on Irish roads. **Purpose:** To collect, collate, analyse and disseminate the road injury collision data, with the aim of creating and maintaining an accurate and timely dataset of road injury collisions. While data is collected and collated for all incident types, including material damage cases, only records relating to injury collisions (fatal, serious, and minor) are analysed and disseminated. From this perspective, injury incidents are ‘in scope’ and material damage incidents are ‘out of scope’. **Coverage:** National - the number of road users killed and injured in Ireland and other summary statistics of these collisions. There is a daily transfer of data electronically to the RSA.
Road Fatalities and Injury Collision Statistics
There is a daily transfer of data electronically to the RSA; these records are individually assessed and validated. This system was introduced from 1st January 2014 and saw a move away from the paper based form (CT68) previously sent to the RSA by AGS.
The NDTRS is an epidemiological database on treated cases problem drug and alcohol use in Ireland. It records episodes of treatment during the calendar year. It also records incidence and prevalence of drug and alcohol treatment. **Purpose:** The NDTRS was established as an epidemiological database on drug and alcohol misuse treatment episodes in publically funded services.It records incidence of drug and alcohol treatment. Treatment as defined in the NDTRS:  any activity that aims to improve the psychological, medical and social state of individuals  one or more of the following: medication (detoxification, methadone reduction and substitution programmes), addiction counselling, group therapy, psychotherapy and/or life skills **Coverage:** National Data is published annually (approximately 6 months in arrears) however the on-line portal can faciliate real time reporting.
National Drug Treatment Reporting System (NDTRS)
Service providers at drug treatment centres throughout Ireland compile a record of each episode of treatment who attends through the online data entry portal. Submission of data on paper forms can be facilitated if required. As there is currently no unique health identifier in Ireland, the NDTRS records episodes (or cases) of treatment, not individuals. Data is published annually (approximately 6 months in arrears) however the on-line portal can faciliate real time reporting.
GRASS-Ireland is an observational study collecting and analysing the data of adults and children with Alopecia Areata (AA) in Ireland over their lifetime. As an encounter-based registry, data will be collected from each interaction for AA-specific care by investigators at selected sites, on an ongoing basis using a secure, online platform. This data will be used to better understand the background, treatments and outcomes of people with AA. This will be used for advocacy and to support planning of services, management and assistance of this group. The registry may also be useful to identify patients who could participate in suitable clinical trials and support pharmacovigilance studies. The information generated will be of interest to physicians, researchers, health service providers, regulatory authorities, the pharmaceutical industry and persons with AA. It will guide the development of international best practice standards and the treatment strategies to meet these. GRASS – Ireland is a founding member of a collaborative, global network of sovereign GRASS registries that aim to better understand the health, well-being and treatment of people with AA. **Purpose:** Alopecia Areata (AA) is an autoimmune hair loss condition that affects approximately 2% of the population. It typically presents with patchy to complete loss of scalp hair, though other hair bearing sites and the nails can also be affected. Research shows that AA has a major impact on physical and psychological health. The aim of this project is to establish an Irish AA patient registry, which enables clinicians to record long-term, real-world data.This data will be pivotal in informing clinical **Coverage:** National and International, the study duration is ongoing.
Global Registry of Alopecia Areata Disease Severity and treatment Safety - Ireland (GRASS - Ireland)
Enrolment in the registry is subject to a process of gaining informed explicit consent from patients or their parents or carer (if under 18). Participation is voluntary. The data is then collected from the patients charts after their standard clinic visits and entered onto the registry platform. Data is collected from patient medical charts and input into a secure internet-based computer database. Data collection is undertaken by GRASS-Ireland registry data collectors. Data is collected on a continual basis throughout the year and GRASS-Ireland data collectors collect data on an encounter basis.
Collation of monthly employment data from all public health service employers (HSE, Section 38 hospitals & voluntary agencies) in whole-time equivalence (WTE), headcount (HC), grade, gender, functional area and location terms monitoring, resourcing & workforce planning purposes. HSPC has a statutory basis. **Purpose:** Monthly reporting of directly employed public health service staffing by grade for resourcing and planning purposes. **Coverage:** National; configured based on service delivery structures (Hospital Groups, CHI, Community Healthcare Organisations (CHOs), HWB, HBS, & National Services.
SAP Bex, Excel or CSV files. Monthly data collection.
SARI surveillance in Ireland is a syndromic sentinel hospital surveillance project, which is part of a wider European network of SARI hospitals, E-SARI-NET. There is currently only one SARI sentinel hospital site in Ireland, collecting case-based data. SARI cases are identified from new admissions through the Emergency Department, based on clinical symptoms. SARI patients are tested for SARS-CoV-2, influenza and respiratory syncytial virus (RSV). Epidemiological reports are produced by HPSC on a weekly basis on the incidence of persons hospitalised with SARI; epidemiological, clinical and virological data are described, including influenza and COVID-19 vaccination status and outcome. **Purpose:** 1. Monitor SARI incidence trends 2. Describe intensity of activity and severity of SARI infections 3. To identify and monitor groups at risk of severe disease 4. To assess the SARI burden of disease 5. To assess and monitor vaccine effectiveness 6. To develop recommendations for SARI surveillance. In scope: SARI surveillance monitors SARI cases admitted through the Emergency Department, based on clinical symptoms. Only one SARI hospital site was included at the time of publication. Out of sco **Coverage:** Limited to one acute hospital – St Vincent’s University Hospital, Dublin, which has a catchment population of 304,146 (those aged 14 years and older) according to 2021 population projection. Surveillance began in July 2021; data are analysed on a weekly ongoing basis.
Surveillance of severe acute respiratory infections (SARI)
Information is extracted from medical charts or records by research nurses, and from laboratory information systems by an epidemiologist. Data are extracted from the hospital SARI database to an excel file, and sent to HPSC on a weekly basis. Data are imported into the HPSC SARI database. The HSE Integrated Information Service (IIS) match SARI patients to COVID-19 vaccine data (from the National COVID-19 vaccination system) on a weekly basis. These data are imported into the HPSC SARI database.
Principal source of data on substance use among 15-16 year olds in Ireland, and their gaming, gambling and social media use. **Purpose:** ESPAD is a collaborative effort of independent research teams in more than 40 European countries and the largest cross-national research project on adolescent substance use in the world. The overall aim of the project is to repeatedly collect comparable data on substance use among 15-16 year old students in as many European countries as possible. **Coverage:** National representative school-based sample. Data collected every 4 years since 1995. Last collected 2019.
European School Survey Project on Alcohol and Other Drugs (ESPAD)
TobaccoFree Research Institute Ireland (TFRI)
Surveys have been repeated every four years, with 1995 as the starting point, in as many European countries as possible. Ireland has participated in every wave.
The Heartwatch Programme has not advanced beyond Phase 1 which is a pilot demonstration programme. As such the purpose was to demonstrate the benefit of involvement in a structured care programme with care implemented according to defined clinical protocols. **Purpose:** The aim of Heartwatch is to reduce the morbidity and mortality of patients with cardiovascular disease (secondary prevention). **Coverage:** 20% of GPs nationwide. Data collection commenced in 2003; and is geographically diverse, representing all of the country.
Irish College of General Practitioners (ICGP)
Data is collected at scheduled Heartwatch visits with patients who have agreed to participate in the programme. The GP practice completes the relevant data at each patient visit and enters the data on their GP software programme. Once data is completed they upload anonymised patient reports via the INDC website using an ID and password. Data is uploaded monthly by practices.
A project to set up an Irish Out-of-Hospital Cardiac Arrest Register (OHCAR) was established in November 2007 in accordance with the recommendations of the Report of the Task Force on Sudden Cardiac Death (2006). The purpose of the Register is to enable further understanding and research into OHCAR in Ireland. By quantifying and describing cardiac arrests that occur in the community the register will enable:  Investigation of the determinations of survival/death from OHCAR  Investigation of the effect of interventions on survival/death  Monitoring of survival from OHCAR and subsequent quality of life. **Purpose:** The purpose of the OHCAR register is to facilitate improvements in survival from OHCA in Ireland by fulfilling the following objectives:  establishing the current OHCA survival rate  identifying factors that contribute to survival  identifying what could be done differently to improve survival  providing regular feedback to service providers. **Coverage:** National. OHCAR started collecting data on a regional basis from 2007 – 2012 and nationally thereafter to present day .
Out of Hospital Cardiac Arrest Register (OHCAR)
The OHCAR data collection continuum begins at receipt of the emergency call and ends at patient discharge from hospital. Summary findings from the data are reported back to ambulance management. In order that the data on OHCAR can be compared with other registries, data is collected using the internationally agreed Utstein template. Additional data items that are important in the Irish context are also collected. Data is collected daily.
The Irish EB registry is an observational study of the EB patient population in Ireland recently launched by NISR. It is being run at Our Lady's Children's Hospital Crumlin and St James’s Hospital, Dublin. By collecting and analysing information on people with EB in Ireland, we can better understand their health and wellbeing, and the benefits of treatments provided. **Purpose:** The Irish Epidermolysis Bullosa (EB) Registry was established in 2020 as a subcommittee of the National and International Skin Registry Solutions CLG to identify, collect, record, store and analyse information relating to the prevalence and incidence of EB. This information could be used to examine how symptoms and treatments change over time and the impact that evolving therapies have on patient and physician reported outcomes. Information on EB could be provided to governmental agencies, heal **Coverage:** Geographic: This registry is currently running from Crumlin Children’s Hospital and St James Hospital. Temporal: Data collection commenced March 2021 and is ongoing.
Irish Epidermolysis Bullosa (EB) Registry
Enrolment in the registry is subject to a process of gaining informed explicit consent from patients diagnosed with EB/their parents or carer (if under 18). Participation is voluntary. The data is then collected from the patient’s charts after their standard clinic visits and entered onto the registry platform. Data is collected from patient medical charts and inputted into a secure internet-based computer database. Data collection is undertaken by EB registry data collectors. Data is collected on a continual basis throughout the year and EB data collectors collect data on an encounter basis.
MHC collects demographic and clinical data in relation to the administration of ECT in approved centres nationally. **Purpose:** The Commission was established in 2002. They are an independent body and their functions are set out by law in the Mental Health Act 2001. Their main functions are to promote, encourage and foster high standards and good practices in the delivery of mental health services and to protect the interests of patients who are involuntarily admitted. The Mental Health Commission is responsible for regulating and monitoring mental health services. Data on the administration of ECT are collected in acco **Coverage:** National: All approved centres that administer ECT or refer a person to another approved centre for ECT treatment. Collection started 01/01/2008 and is ongoing.
Administration of Electro-convulsive Therapy (ECT) in approved Centres
Data are extracted from registers in approved centres and submitted on a secure online system by clinicians or administrative staff with an individual user account. The secure online system is operated by MHC staff who also have individual user accounts. Data collection occurs when information is submitted to MHC by clinicians or administrative staff in approved centres. Staff in approved centres are required to submit this data within 7 days of the completion of the ECT programme.
In-hospital mortality patterns have been used internationally as one indicator of the quality of care. While there are a number of similar ways of doing this, the standardised mortality ratio (SMR) is the most commonly used approach for looking at hospital mortality patterns within a country. The SMR is the ratio between the observed number of patients who die in hospital and the number that would be expected to die in hospital on the basis of the overall national rate. It is based on the primary reason a patient is admitted to hospital. Importantly this does not infer the cause of death. The information comes from the Hospital In-Patient Enquiry (HIPE) system, which contains clinical and administrative data on patients who have been admitted to hospital and is routinely collected by all publicly funded acute hospitals. Personal information i.e. information which could be used to identify a patient such as name, address and date of birth, is not taken from the hospital system and is not used in this audit. Patient confidentiality and privacy is fully protected in this manner. To ensure that “like is compared with like” across the diversity of hospitals, factors that potentially may directly influence the outcome are adjusted for in the analysis, for example, patient age and the presence of other serious illnesses to calculate the number of expected deaths. **Purpose:** The objectives of NAHM are to: 1. Understand and improve the quality of hospital based mortality data. 2. Identify areas for improvement – NQAIS NAHM Tool. 3. Promote reflection on the quality of overall patient care. ‘In scope’ are all patients admitted on HIPE for in-hospital treatment. ‘Out of scope’ are Maternity patients, Day case patients and Mental Health patients. Also excluded are deaths which occur in ED as they are not captured on HIPE. **Coverage:** National data. Temporal coverage starts at 2005 and is updated quarterly.
National Audit of Hospital Mortality (NAHM)
There is no dedicated data collection. Data for NQAIS NAHM is sourced from HIPE which is coded on discharge. HIPE data is sent from the HPO (Healthcare Pricing Office) to the NHIU (National Health Intelligence Unit) HSE then uploaded to the NQAIS NAHM Tool on a quarterly basis or more frequently as required.
National Incident Management System (NIMS) is the principal source of national data on incident activity for the Irish health and social care service. It has been designated as the primary system for end to end risk management of all incidents (capture, investigations and reporting) both by the DoH and the HSE. It is an end to end risk management web-based system and its purpose is as follows:  Capture of incidents (including Serious Reportable Events); involving patients including dangerous occurrences and complaints  Management of incident reviews  Recording of review conclusions  Recording of review recommendations  Tracking recommendations to closure  Multiple reporting and analytical tools which could be pointed at all captured data  Facilitates reporting and analysis of patient safety incident data captured  Facilitates reporting and analysis of review conclusions and contributory factors  Facilitates reporting and analysis of key performance indicators (KPIs) as set out in the HSE Service Plan  Facilitates the analysis of safety performance to inform risk initiatives. Note: NIMS also captures incidents involving health care workers (HCW) and members of the public and property damage. It also is used to manage claims arising from all incident types. **Purpose:** To maintain and provide the national database of patient safety incident data that meets the needs of data users in the health and social care sector (including quality and patient safety clinical teams, management, policy makers, risk/health and safety managers, facilities staff, and researchers) whilst also supporting effective claims and risk management by the HSE and the SCA. Note comment above re: Tusla. **Coverage:** NIMS is used by all the public health and social care service and is provided to certain private hospitals as part of SafetNet. The areas covered include:  all Hospital Groups, acute hospitals  the CHO’s and Voluntary Community (S. 38’s) healthcare sectors  National Ambulance Service  HSE Corpor
National Incident Management System (NIMS)
The HSE is the ‘owner’ of the NIMS healthcare data with respect of patient safet
NIMS is a confidential, highly secure web-based IT system that links hospitals and other health social care enterprises to a core database. Information is entered to the system locally either via paper based National Incident Report Forms (NIRF) or electronic point of entry reporting (ePoE) and subsequently reviewed. Data relating to the reviews conclusions and outcomes can then be input to the system. Data is available to users depending on their role – hierarchical access model.
The National Perinatal Reporting System (NPRS) has as its principal aim, the provision of national statistics on perinatal events. **Purpose:** To maintain a timely accurate national database of key perinatal indicators over time. Collection, processing, management and reporting of data on all births nationally that meets the needs of the data users (including policymakers, clinical teams and researchers), through the development and support of the system. **Coverage:** All maternity hospitals/departments and independent midwives report to NPRS covering 100% of births in Ireland. NPRS data collection commenced in 1970 and is ongoing.
National Perinatal Reporting System (NPRS)
All births are registered and notified on a standard four part birth notification form which is completed where the birth takes place. Part 3 of this paper form is sent to the HPO office for data entry and validation. Approximately 40% of hospitals submit data electronically to the NPRS system.
The data collection are made up of retrospective (from paper records) and real time data entry records detailing the the processing of each residents who received a vaccination (if consented) or not. The data includes the person-identifying information of the citizen. It also includes data on citizens who were not vaccinated by virtue of non-attendance. **Purpose:** The COVAX system is an electronic dataset which records all COVID-19 vaccinations for all residents in the State. It also assists in the planning of vaccination clinics as well as being used for statistical and activity analysis. In-Scope: All COVID-19 vaccinations for all residents who receive a vaccination in Ireland leading to a Vaccination certificate for travel purposes. Out-of-Scope: Non-COVID-19 vaccinations (e.g. Schools Immunisation Programme). **Coverage:** National – all residents of the State who have registered for COVID-19 vaccination during 2021 and 2022 to date. The data collection start date was the 27th December 2020 and continues to this day.
COVAX: National COVID-19 Immunisation System
The data are collected on an as-required basis. This, in practise, is a daily occurrence as residents can log onto a portal to provide their information. In addition to this, information is provided via electronic transmission from GPs and Pharmacies at the point of vaccination.
Surveillance of consumption of alcohol-based hand washing gels in acute hospitals. Data from entire facility in litres per each quarter supplied to HPSC. Results as rates, expressed as litre per 1000 Bed-days used per hospital are published quarterly. **Purpose:** In scope: To support overall multi-faceted strategy for the control and prevention of infectious diseases by providing standardised measure of alcohol hand gel consumption for acute hospitals. **Coverage:** 32 acute hospitals regularly contribute to the data.
Alcohol Hand Rub Consumption Surveillance
Infection prevention and control staff, pharmacists or stores managers provide data on a quarterly basis, of the total amount of alcohol had rub used in litres. An MS Excel template is used for data entry. HPSC provide rates in litres per 1000 bed-days used.
MHC collects demographic and clinical data in relation to the death of any resident in an approved centre and any sudden, unexplained death of a person attending a day hospital, day centre or 24 hour staffed residence. **Purpose:** The Commission was established in 2002. They are an independent body and their functions are set out by law in the Mental Health Act 2001. Their main functions are to promote, encourage and foster high standards and good practices in the delivery of mental health services and to protect the interests of patients who are involuntarily admitted. The Mental Health Commission is responsible for regulating and monitoring mental health services. Data on the deaths are collected in accordance with pro **Coverage:** National coverage - all deaths relating to residents of approved centres and sudden unexplained deaths of service users attending a day hospital, day centre or 24 hour staffed residences. Collection started 01/02/2008 and is ongoing.
Deaths relating to all residents in Approved Centres and Community Mental Health Centres
Data are extracted from medical charts or records in approved centres and submitted on a secure online system by clinicians or administrative with an individual user account. The secure online system is operated by MHC staff who also have individual user accounts. Data collection occurs when information is submitted to MHC by clinicians or administrative staff in approved centres. Staff in approved centres are required to submit this data within 48 hours from the date that the death has occurred within an approved centre and within 7 days from the date of the death if the service is a community health service and if the circumstances of the death are sudden and unexplained.
Data collected by ICU-BIS falls into two categories; ICU occupancy data and COVID-19 specific patient data. ICU occupancy data; Total beds, Staffed /Open beds, occupied beds, reserved beds for new admission, patients cleared for discharge to a ward bed, available beds, number of patients invasively ventilated, number of patients receiving Dialysis (both Intermittent haemodialysis (IHD)& Continuous renal replacement therapy (CRRT). COVID-19 specific patient data; (i) numbers of COVID-19 patients in each Unit, (ii) numbers invasively ventilated, (iii) new admissions, (iv) discharges and (v) deaths in the last 24 hours. Patient level data on COVID-19 patients regarding age, sex, vaccination status, whether currently or recently pregnant (If female), primary reason for admission to ICU (COVID or Non-COVID), location in, source of infection (if known). **Purpose:** To provide timely data for managing ICU capacity, bed availability and facilitation of inter-hospital transfers. During the pandemic, ICU-BIS scope expanded to provide information on COVID-19 specific data and trends for decision makers in the HSE and Department of Health to guide policy. In-scope: Intensive care units occupancy and capacity data. Out of scope: detailed patient level information, this is collected via the ICU audit. **Coverage:** National ;  26 adult public hospitals who have an ICU  2 paediatric ICUs at CHI  5 private hospitals who have an ICU. Temporal coverage: March 2020 to date.
Intensive Care Unit- Bed Information System (ICU-BIS)
The ICU-BIS data are updated at least once a day on the ICU BIS website, providing up-to-date information on ICU bed occupancy and COVID specific data. A designated user (ICU Consultant/doctor, Clinical Nurse Manager, Nurse in charge, ICU clerical support, Bed management) in each of the participating hospitals enters or gives the data to the NOCA data collector. The data is validated daily by NOCA.
TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs and contributions of older persons in Ireland to inform and support improvements in policy and practice; advancements in technology and innovation; tailored education and training through an enhanced ageing research infrastructure; harmonisation with leading international research to ensure adoption of best policy and practice and comparability of results. **Purpose:** The Irish Longitudinal study on Ageing (TILDA) is an inter-institutional initiative led by Trinity College Dublin which aims to produce improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. In scope: Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study will involve interviews on a two yearly basis with a sample cohort of 8,000+ people aged 50 and over (or t **Coverage:** A nationally representative sample of adults aged 50 and over, resident in Ireland, was selected. An initial multi-stage sample of addresses was chosen by means of the RANSAM sampling procedure, which was developed by the Economic and Social Research Institute (ESRI) based on the Irish GeodirectoryO
TILDA- The Irish Longitudinal Study on Ageing
Each wave of data collection involves a structured Computer Aided Personal Interview (CAPI) with a trained interviewer in the participant’s home. Each participant is also left a ‘self-completion questionnaire’ including potentially sensitive questions for them to fill in and return to TILDA by mail. At alternating waves of data collection, each participant is invited to undergo a health assessment, either a full health assessment at a specialised TILDA health centre or a modified partial assessment in their own home where travel to a centre was not practicable. If a participant is unable to complete an interview themselves due to physical or cognitive impairment, a proxy interview completed by a close family member or friend is sought. If a participant has passed away between waves, a family member or close friend will be asked to complete an End-of-Life (EOL) interview of their behalf. Data collection for each wave takes place every two years.
The Cardiac First Response (CFR) report is a two-part patient record which is completed for every patient contact by a trained community first responder who attends an incident. The data is collected in line with the international Utstein style template which ultimately summarises outcomes and survival rates. **Purpose:** To collect out-of-hospital cardiac arrests data on the patient population who suffer an out-of-hospital cardiac arrest in order to collect information on pre-hospital treatments, summarise outcomes and survival rates. **Coverage:** National coverage. All incidents where a community first responder who has completed a recognised Cardiac First Response course is in attendance.
Cardiac First Response Report (CFR Report)
Out-of-hospital cardiac arrest data is collected on the CFR Report each time a trained responder attends an incident. In addition out-of-hospital cardiac arrest data is collected from the following sources: Patient Care Report (PCR) Ambulance Service National Emergency Operations Centre (NEOC) Systems, destination hospital/ emergency department (ED), GP systems. It is collated, verified and entered in to the national out-of-hospital cardiac arrest register (OHCAR).
The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme is the Oncology Drugs Management System, which is operated by the Primary Care Reimbursement Service (PCRS) on behalf of NCCP. This online based system is designed to collect information from hospitals on an ongoing basis in relation to patient demographic data, cancer drug use and cancer drug spending. **Purpose:** To coordinate and manage the use of cancer drugs nationally. The full statement of purpose can be found at this link [PDF]. **Coverage:** National – there are 26 acute public hospitals nationally that provide cancer drug services and participate in the National Cancer Drug Management Programme. Data collection is on a continuous basis to enable a funding mechanism.
National Oncology Drugs Management System
Hospital staff input the required data into an online system. The system is managed and operated by PCRS. Anonymised aggregated reports from the system are provided by PCRS to NCCP. Data is collected monthly.
This audit provides a complete account of activity and outcomes in all paediatric intensive care units providing critical care to children in the ROI. In addition to data from specialised paediatric critical care units and from transfer and retrieval services that traditionally provide data to PICANet (based in the UK), this audit also includes data from adult ICUs and the regional Paediatric High Dependency Unit at UHL, giving a complete description of national activity. **Purpose:** The overall purpose of the IPCCA is to improve critical care services provided to paediatric patients by measuring the quality of care and outcomes against predetermined standards, using data from the UK and the Republic of Ireland (ROI) as a whole as a benchmark. Objectives:  Measure the quality of care in CHI at Crumlin and CHI at Temple Street, and benchmark this against other PCCUs across the UK  Provide data on the epidemiology and complexity of care provided for each patient. This has **Coverage:** National audit with data collection from public hospitals with Paediatric critical care units, the regional Paediatric High Dependency Unit at University Hospital Limerick (UHL) and children aged < 16 treated in adult ICU. Under consideration: regional paediatric high dependency units and intensive
Irish Paediatric Critical Care Audit (IPCCA)
Each hospital/ transport organisation submits data to PICANet via a secure web-based portal. Data submission can involve direct entry of patient data or monthly upload of a data file from an existing clinical information system. The dataset is frozen on 31 March annually. Data for children admitted to adult ICU’s is provided by NOCA’s INICUA ICNARC dataset.
Antenatal HIV testing for pregnant women. In April 1999, the Department of Health and Children, on the advice of the National AIDS Strategy Committee (NASC), introduced a policy of voluntary antenatal HIV testing in Ireland. As part of this programme, it is recommended that HIV testing be offered to all women who attend for antenatal services. HPSC were asked to set up a system to monitor the HIV antenatal testing programme. **Purpose:** To provide the best possible information for the control and prevention of infectious diseases, by providing timely information and independent advice, and by carrying out disease surveillance, epidemiological investigation and related research and training. Data on some private patients attending public hospitals is not provided. **Coverage:** Voluntary participation - 19 maternity hospitals/units participating. Data collected since 2002.
Data are collected on an annual basis by the HPSC from maternity hospitals and units. Surveillance forms are completed by staff in maternity hospitals/clinics on paper or electronically and returned to HPSC.
Automated test dataset created by Playwright. Safe to delete.
Each year, the Irish Focal Point to the EMCDDA, based in the Health Research Board, presents a report on the drugs situation in Ireland to the European Monitoring Centre for Drugs and Drug Addiction (EMCDDA). Data from this national report is aggregated with data from the other member states to prepare into the EMCDDA’s annual European Drugs Report published in June each year. **Purpose:** The European Monitoring Centre for Drugs and Drug Addiction coordinates the work of 29 National Focal Points that act as monitoring centres gathering and analysing drug-related information in their own countries (27 EU member states, Norway and Turkey) and supplying data to the EMCDDA. The Irish Focal Point to the EMCDDA is based in the Health Research Board. Each year it provides a report on the drug situation in Ireland which is prepared according to common data-collection standards and tool **Coverage:** Member states of the European Union. Data collection commenced in 1997 and is updated annually.
2021 National Report (2020 data) to the EMCDDA by the Reitox National Focal Point. Ireland: new developments, trends Previously Drug Situation Ireland — National report to the European Monitoring Cent
Data collated annually from surveys, health surveillance systems, administrative data provided by health services, NGOs, law enforcement agencies and government departments.
National Intensive Care Audit is a computer-based system designed to collect demographic, clinical and outcome details on admissions to ICU’s, in hospitals nationally. **Purpose:** National ICU Audit aims to;  Measure indicators of the quality of care in each ICU and benchmark these against other units in Ireland and the UK through the Intensive Care National Audit and Research Centre ICNARC – the UK body for ICU Audit  Measure activity in each unit to aid the planning of critical care services locally and nationally  Provide data on complexity of care provided for each patient with potential to link this to reimbursement in the future  National Coverage to include al **Coverage:** National audit with data collection from public and private hospitals with Intensive Care Units. National Coverage to include all ICUs in Public and Private sector.
Irish National Intensive Care Unit (ICU) Audit Previously National Intensive Care Unit (ICU) Audit
All patients admitted to ICU/HDU in contributing hospital ICU’s have data collected for the full stay up to discharge from the acute hospital Data is collected by ICU audit Coordinators (all nurses). Data is downloaded from hospital systems, taken from medical charts or records, and entering onto the ICU Audit system. Data collection and validation is continuous, with quarterly reporting.
The data collection are made up of retrospective data entry records from paper records detailing the the processing of each school-going aged child who received a vaccination (if consented) or not. The data includes the person-identifying information of the child and one parent/guardian (or self if age appropriate) along with a record of the consent provided (or declined). It also includes data on children who were not vaccinated by virtue of non-attendance. **Purpose:** The SIS is an electronic dataset which records all childhood vaccinations for children of School-going age. It also assists in the preparation and planning of vaccination sessions in schools and mop-up clinics as well as being used for statistical and activity analysis. In-Scope: All vaccinations for children of school-going age. Out-of-Scope: Baby & Toddler immunisations and adult Community Immunisations (Flu, Covid-19 etc.) **Coverage:** National – all children of school age within the State. SIS has collected data on School Immunisations since the Academic Year of 2010-2011.
National School Immunisation System (SIS)
Dept Education provide schools. School immunisation staff provide details of school cohorts. Parents and guardians provide demographic information and vaccinators provide vaccine information on the medical record form. Data is entered on the system on a near-daily basis during each working day (Mon-Fri) of the academic year.
HIPE is the principal source of national data on discharges from acute hospitals in Ireland. **Purpose:** To maintain a timely accurate national database of hospital discharge activity that meets the needs of the data users (including policymakers, clinical teams and researchers), through the development and support of the data collection and reporting software, training of coders, data quality, audit, reporting, and responding to requests for data. All acute public hospitals participate in HIPE. Private hospitals are not included. **Coverage:** National- all acute public hospitals participate in HIPE. HIPE data collection commenced in 1971 and is ongoing.
Information is abstracted from medical charts or records and coded by trained clinical coders in line with national and international coding guidelines before entering into HIPE system (HIPE Portal). HIPE data is exported from acute hospitals to the HPO on a monthly basis with an expectation of a time lag of 30 days post patient discharge.
The HSE supports the delivery of primary healthcare by operating contracts with primary care contractors for the provision of health services to members of the public in their own community. **Purpose:** To support the delivery of primary healthcare by providing reimbursement services to primary care contractors for the provision of health services to members of the public in their own community. **Coverage:** The data covers the main national health schemes throughout the entire country. 1970- Present.
Primary Care Reimbursement Service (PCRS)
Claim data is processed and payments are made by the Primary Care Reimbursement Service under the following Schemes/Payment Arrangements:  General Medical Services (GMS)  Drugs Payment Scheme (DPS)  Long Term Illness Scheme (LTI)  Dental Treatment Services Scheme (DTSS)  European Economic Area (EEA)  High Tech Drugs (HTD)  Primary Childhood Immunisation Scheme  Health (Amendment) Act 1996  Methadone Treatment Scheme  Health Service Executive Community Ophthalmic Services Scheme (HSE-COS)  Immunisations for certain GMS Eligible Persons  General Practitioner Visit Card (GPVC) Data is collected via both electronic and manual data capture approaches. Data is captured record by record in real time as its generated and also in batches from various parts of the health system, e.g. HSE offices and Pharmacies etc.
The database records data on all residents (on 31 March of the census year in question) of psychiatric inpatient facilities on the register of approved centres under the Mental Health Act 2001. **Purpose:** The census database is a psychiatric inpatient database which captures the number of psychiatric patient’s resident on a certain date for the planning and future development of mental health services and to allow for the prediction of possible future bed and hospital requirements at both national and local levels by service planners, HSE management teams and clinicians. Coverage is limited to residents in MHC approved centres. Community provision is out of scope. **Coverage:** All psychiatric units and hospitals operating under the provisions of the Mental Health Act 2001 and on the register of approved centres under the Mental Health Act. Data has been collected at various census intervals since 1963.
Irish Psychiatric Units and Hospitals Census
Data for the census are collected by each hospital/centre for each inpatient resident on 31 March and returned electronically to the HRB. Data is currently collected every three years and this timeframe is reviewed according to demands for increased or decreased frequency for census data.
Designated perinatal mortality data coordinators within all maternity units collate and submit data on all perinatal deaths occurring in their unit to the NPEC using a specific, detailed notification form. **Purpose:** To address the investigation of perinatal mortality in Ireland from a clinical perspective. To identify modifiable risk factors impacting on adverse perinatal outcomes. This will enhance clinical interpretation of perinatal deaths which will further assist in informing clinical practice, public health interventions and counselling of prospective parents. **Coverage:** National. Data collection commenced in 2008 and is ongoing.
Perinatal Mortality National Clinical Audit Previously Perinatal Mortality Surveillance System
Data is submitted either via the secure online NPEC database, or alternatively by paper format.
The NSHRI is a national system of population monitoring for the occurrence of self-harm in Ireland. **Purpose:** The NSHRI is a national surveillance system which gathers information on hospital presenting self-harm at Emergency Departments in all hospitals across Ireland. The aims of the NSHRI are:  to establish the extent and nature of hospital presenting self-harm in Ireland  to monitor trends over time and by area  to contribute to policy development in the area of suicidal behaviour  to help the progress of research and prevention. All acute public hospitals, both general and paediatric, contrib **Coverage:** National – all acute public hospitals, both general and paediatric, contribute data to the NSHRI. Data collection for the NSHRI commenced at a regional level in 1995 and expanded to full national coverage in 2006. Data collection is ongoing.
National Self-Harm Registry Ireland (NSHRI) Previously National Self-Harm Registry Ireland)
Data on self-harm presentations are extracted at the presenting hospital by NSHRI trained data registration officers. Data is transferred electronically to the offices of the NSRF. NSHRI data are collected on a weekly basis.
The IBTS maintains a computerised donor database on individuals who donate blood. This database (called Progesa) is used by the IBTS to communicate with donors, record their donation and test result details. This information is used for analysis of the blood donor population. The IBTS also publishes information on the current blood supply available for donation in Ireland. **Purpose:** To maintain a computerised donor database on individuals who donate blood. **Coverage:** National — all who attend a blood donation clinic are required to register with the IBTS. Data collection commenced in 1965 and is ongoing.
All donors are required to register with the IBTS, when they present at a donation clinic, and fill out a health and lifestyle questionnaire. On-going data collection.
HFA is a central database of independent, comparable and up-to-date basic health statistics. It has been a key source of information on health in the European Region since WHO/ Europe launched it in the mid-1980s. It contains time series from 1970. **Purpose:** To collate independent, comparable and up to date health statistics for all WHO Member States in the European region to support the monitoring of health trends. **Coverage:** The database includes data for all 53 WHO Member States in the WHO European Region, although data availability and comparability may be limited for some countries. The databases cover the period from 1970 to the present.
European Health for All family of databases
There are various sources from which WHO/Europe regularly collects health data. Part of the data is annually collected directly from countries; a request for data is issued by the WHO every year for an update of around 200 indicators. Data is submitted on excel spreadsheets. Another part of data comes from those WHO technical units that collect appropriate statistical information within their own field. Mostly this relates to the incidence of infectious diseases, immunisation and mortality data by cause, age and sex. Secondary information sources, such as other international organisations and agencies, are also an important source of data for a number of indicators. In addition to above, data is transmitted annually to Eurostat, OECD and the WHO by means of the Joint Data Collection on non-Monetary Health Care Statistics. This joint data collection is a harmonised approach developed by Eurostat, OECD and WHO in order to reduce the data collection burden on countries.
The Irish Heart Attack Audit reports on data from the Heartbeat portal which is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for patients with STEMI. **Purpose:** Aim: To conduct audit of Acute Coronary Syndrome (ACS) care. IHAA objectives can be found at this link: https://www.noca.ie/acs-objectives In scope:  Currently the IHAA collects data on all patients with an ST elevated Myocardial Infarction (STEMI), who are admitted to a percutaneous intervention (PCI) centre for Primary PCI  Patients can be either admitted directly to a PCI centre or transferred from another hospital to the PCI centre  Cases reported are 18 years or more. Out of scope: **Coverage:** National. All hospitals that provide a Primary PCI service, n=10. The degree of coverage of STEMI cases is based on the number of STEMI (ICD 10 AM codes i21.0, i21.1, i21.2, i21.3) cases discharged from the PCI centres against the number of cases submitted onto the Heartbeat portal via HIPE (Hospi
Data is taken from the medical record by audit coordinators (senior cardiology nursing staff) with permitted access and inputted into the HIPE Heartbeat portal. Data can be entered while the patient is an in-patient and completed on discharge. Data entry is requested to be complete within the quarter following discharge from hospital. If a patient is transferred to a local hospital for on-going acute STEMI care audit coordinators contact colleagues in the local hospital to access additional outcome data e.g. discharge destination. All data must be submitted by the close of the HIPE file, usually one quarter after end of calendar year.
This is a register for all Spinal patients referred for consultation/ admission to the Mater Hospital. It uses Patient Advocate Tracking System (PATS) software. **Purpose:** To capture all spinal injury consultations, referrals, OPD & admissions to the Mater Hospital (does not include details of treatment in other hospitals). **Coverage:** National. Commenced in June 2008 and is ongoing.
Referring hospitals use online Spinal Portal. Data draw down weekly, monthly, quarterly, annually, and as and when required.
Hospitals submit their data to the Vermont Oxford Network. The VON returns the data on the infants born in the Republic of Ireland to NPEC and this centre subsequently analyses it and publishes an annual report. General data from all participant VON centres (the network data) is also available to the NPEC. The NPEC holds these data acting as a national repository for the yearly national data. **Purpose:** The purpose of the audit is to improve the quality and safety of care for very low birth weight babies in Ireland. Scope: Any infant born with a weight from 401 and 1500 grams OR whose gestational age is between 22 weeks 0 days and 29 weeks 6 days (inclusive) who is admitted to or dies in any location in any neonatal centre in ROI within 28 days of birth. **Coverage:** National coverage: 19 neonatal centres and two tertiary paediatric children’s hospitals. Data collection commenced in 2014 and is ongoing.
Very Low Birth Weight Infants in the Republic of Ireland
Through the VON online data submission platform (eNICQ) or in exceptional circumstances, by submission of paper forms to the NPEC. Data is collected on an annual basis.
The National Serosurveillance Programme is the principal source of data on the seroprevalence of COVID-19 in Ireland. **Purpose:** The initial objective of the National Serosurveillance Programme is to report on the seroprevalence of COVID-19 due to vaccination or infection in Ireland over time, by age and quantitative antibody levels. The programme, in time, will provide information on the prevalence of antibodies of other infectious diseases of public health importance. **Coverage:** National- currently 8 acute laboratories of geographic spread, submit residual sera specimens to the NSP. A schedule of collection cycles at 6-week intervals has been agreed until end 2022. The Irish Blood Transfusion Service (IBTS) contribute data from 500 blood donor specimens every two weeks
National Serosurveillance Programme (NSP)
Anonymised demographic data on residual sera specimens is collected at source in the acute laboratories. Laboratory partners update specimen details on the Laboratory Data Form before sending to the Seroepidemiology Unit (SEU). Specimens are sent to the National Virus Reference Laboratory (NVRL) for testing. Once testing is complete, specimen results data is sent to HPSC SEU. Specimen result data is then matched with the anonymised demographic data forms from our laboratory partners, using the SEU ID as the primary identifier. IBTS collect data on blood donor specimens. Specimens are tested on site in IBTS and in St James’s Hospital
The ACR is the principal source for patient data captured at events. **Purpose:** To collect Event data on the patient who primarily requires first-aid and capture of data if additional care is required. This will: 1) facilitate strategic planning primarily for voluntary and auxiliary organisations. 2) provide a link in the continuum of patient care across all voluntary and auxiliary organisations in the event of patient handover to another licensed CPG provider. 3) provide a platform for clinical audit. 4) inform research into new skill, services/equipment. **Coverage:** National coverage at all Events which have medical cover provided by responders/practitioners, on contract or volunteering on behalf of a licensed CPG provider.
Event data is collected on the ACR real time for every patient contact. Patient information is entered on the 2 part report in circumstances listed: All circumstances where a patient is treated. All circumstances where a patient refuses treatment contrary to advice given by the responder/practitioner. In the event of the patient being transported to an ED/destination facility an ACR copy is included at handover and stored with the patient record/chart. The remaining copy remains with the licensed CPG provider organisation for storage. eACR used by CPG Providers.
Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of expertise, which became a full member of the RITA European Reference Network in later Jan 2022. A key requirement of this membership is maintenance of a relevant rare disease registry. The Vasculitis Ireland Awareness national patient organisation is intimately linked with the registry. **Purpose:** In scope: 1. Act as a contact registry for Irish patients with systemic vasculitis 2. To provide key outcome data (death, end-stage kidney disease, relapse, complications) of patients with primary systemic vasculitis 3. To link to discrete samples in the RKD biobank. Out of scope: 1. Private Hospitals. **Coverage:** National; the primary centres managing patients with ANCA vasculitis are included. The following sites collect data: 1. Tallaght University Hospital (lead site) 2. St James Hospital 3. St Vincents Hospital 4. Beaumont Hospital 5. Mater Hospital 6. University Hospital Galway 7. Cork University Ho
Irish National Rare Kidney Disease Registry
Data are generally entered by the primary medical team with support from research nurses in some centres. It is strongly reliant upon NCHD support for data entry. There is no linkage to hospital IT systems. A contracted data manager surveys data quality on each site on a rotating basis.
The database records all admissions to, discharges from and deaths in Irish psychiatric units and hospitals on the register of approved centres under the Mental Health Act 2001. The annual reports produced from the database play a key role in the planning of service delivery. National and regional bulletins capturing data for the HSE areas, along with an in-patient census carried out every three years, are also produced from the database. The database also provides much of the data on Performance Indicators (PIs) for the mental health services which are used to monitor targets in certain keys areas of the services. **Purpose:** The NPIRS is a psychiatric inpatient database which provides detailed information on all admissions to and discharges from in-patient psychiatric services in Ireland for service planning and delivery, the Department of Health, the HSE, clinicians, service user advocacy groups and research/academics through the quarterly production of KPI reports, the annual report, regional bulletins and requests for data/research collaboration. Community mental health settings are not included in coverage. **Coverage:** All centres approved under the Mental Health Act 2001 including private psychiatric hospitals and child and adolescent units are included. Data collection commenced in 1963 with a census of all in-patients and annual data has been published since 1965 to the present.
National Psychiatric Inpatient Reporting System (NPIRS)
Data are collected by each hospital/approved centre upon admission/discharge of a patient and returned to the NPIRS team in the National Health Information Systems of the HRB. Data are returned electronically on a quarterly basis by acute psychiatric hospitals/units and yearly by non-acute psychiatric hospitals/units.
The NKDSS is one of the largest linked longitudinal surveillance systems in Ireland. It captures both regional-level data from laboratory and regional HIPE systems and links this data to national datasets such as the ESKD registries and CSO Vital Statistics. The system provides detailed insights into chronic kidney disease (CKD) in Ireland by integrating data from various sources to support research and policymaking. It also reviews and analyses pseudonymised national data collections to enhance the understanding of CKD trends. **Purpose:** To provide a robust, trusted research data hub for the surveillance of chronic kidney disease (CKD) in Ireland, linking regional data sources from laboratory information systems (LIS), regional HIPE systems, the national ESKD registers, and CSO Vital Statistics. The NKDSS and QA Programme aims to improve the understanding of CKD by linking regional data and reviewing anonymised national data collections. The system is designed to enhance the quality of kidney disease data and ensure the integrit **Coverage:** National – Captures data from regional systems, including laboratory information systems, regional and national HIPE systems, national ESKD registries, and the CSO Vital Statistics data.
National Kidney Disease Surveillance System (NKDSS) and Quality Assurance Programme (QA)
Data is collected from regional laboratory information systems, regional HIPE systems, national ESKD registries, and CSO Vital Statistics data. This data is linked and anonymised for research and analysis purposes. The data is integrated periodically, and the system performs linkage across various data sources to generate insights into CKD in Ireland. Frequency of data collection: Monthly for laboratory, Bi-annual and annual data uploads for regional and national datasets, with annual reviews of anonymised national data.
INOR is an electronic point of care system, designed to collect demographic, clinical and implant component data on patients admitted to hospital for primary and revision arthroplasty surgery in hospitals nationally. Clinical and patient-reported outcome information is also collected at defined time points following patients’ surgery. **Purpose:** The main objective of INOR is to monitor the quality and safety of arthroplasty, ensure safe surgical practice for patients and to maintain a register of implants used. INOR will support hospitals should an implant recall occur. INOR’s secondary objectives are to:  define the epidemiology of joint replacement surgery in Ireland  provide timely information on the outcomes of joint replacements  identify risk factors for poor outcomes  assist in the assessment and education of clinicians. **Coverage:** When INOR implementation is complete, all elective public and private Orthopaedic Centres in Ireland will be included. As of Dec 2021, INOR includes nine participating hospitals. Data collection on participating patients is for the lifetime of the implant or the patient.
Irish National Orthopaedic Register (INOR)
Data collection is in real time at time of procedure and ongoing. Data is entered directly onto INOR by the clinical team, at the point of care (Nurses, Surgeons and Patients). The INOR system collects data in real-time in:  Pre- and Post-Operative assessment units to record Pre-Operative MDS information, Patient Consent, Post-Operative assessment MDS information and PROMs  Orthopaedic Theatres to record Peri-operative MDS information, Components and to provide a Post-Operative note to consultants  NOCA to monitor and manage the system, including the provision of register Reports.
The European Antimicrobial Resistance Surveillance System (EARSS) was established in 1999 in response to the growing threat of antimicrobial resistance in Europe. In 2010 EARSS coordination was transferred to the European Centre for Disease Prevention and Control (ECDC) and renamed the European Antimicrobial Resistance Surveillance Network (EARS-Net). EARS-Net Ireland comprises a network of 36 microbiological laboratories serving 60 acute hospitals (both public and private) in Ireland that collects routinely-generated antimicrobial susceptibility testing data on invasive infections caused by eight important bacterial pathogens: S. aureus, S. pneumoniae, E. coli, E. faecalis, E. faecium, K. pneumoniae, P. aeruginosa and Acinetobacter spp. Additionally, data are collected on invasive cases of:  Group A and Group B streptococci  Candida spp. to check for the presence of C. auris, an important emerging pathogen. **Purpose:** To monitor trends in antimicrobial resistance data from 8 key pathogens (listed above) in order to inform infection prevention and control teams and other policy decision makers. The data from EARS-Net are used to produce a national report on S. aureus/MRSA bacteraemia by acute hospital. **Coverage:** All microbiology laboratories are required to participate in EARS-Net surveillance. However, resource issues can result in labs suspending their participation. Between 2017 and 2020, coverage of the Irish population has exceeded 95%. Data are available from 1999-2021.
National Antimicrobial Resistance Surveillance (EARS-Net Ireland) Previously National Antimicrobial Resistance Surveillance
EARS-Net collects data on the first invasive isolate (from blood or cerebrospinal fluid) of each pathogen per patient per year. The majority (95%) of the records are received electronically (usually as file downloads from the Laboratory Information Management System; Excel files; or WHONET files, a free software used to manage antimicrobial resistance data). For the remaining 5%, isolate record forms are submitted (but these are being phased out in 2022). Data is currently collected on an annual basis (note: pre-pandemic, this was on a biannual basis).
This register collects data on all patients attending the rheumatology service who receive biologic therapies (predominantly anti-TNF therapies). **Purpose:** To collect data on all patients attending the rheumatology service who receive biologic therapies, predominantly anti-tumour necrosis factor (anti-TNF therapies). **Coverage:** Patients who attend the Rheumatology Department and receive biological therapies at St. Vincent’s University Hospital.
Irish Biologic Therapies Register* (2014 template)
Data is entered in real time in the clinic by clinicians and afterwards from a questionnaire completed by patients who have attended the clinic.
Rheumatology Department St. Vincent’s University Hospital
Administrative database to regulate the dispensing of methadone treatment. The Central Treatment List (CTL) was established under Statutory Instrument No. 225 (Minister for Health and Children 1998) and is a complete register of all patients receiving methadone (as treatment for problems with opiate use) in Ireland. When a person is considered suitable for methadone detoxification, stabilisation or maintenance, a unique number is allocated to the client and a treatment card is issued for clients when dispensed in community pharmacies. **Purpose:** To regulate the dispensing of methadone and buprenorphine/Naloxone treatment in Ireland. **Coverage:** National (Republic Ireland) — all clients prescribed methadone and buprenorphine/Naloxone treatment within Ireland.
When a person is considered suitable for methadone detoxification, stabilisation or maintenance, in compliance with Regulations the prescribing doctor notifies the CTL with completion of an entry form and a unique number is allocated to the client. Information is updated on a daily basis. Monthly and yearly Stats are compiled.
Database of persons infected with hepatitis C through the administration of blood and blood products in Ireland. Objectives of database  To follow the natural history of infection in this group of people  To evaluate the impact of various host factors on the progression of the disease  To evaluate the outcomes of treatment To monitor the uptake of services  To provide information for the planning and evaluation of health services  To serve as a resource for future research into hepatitis C. **Purpose:** In scope: To follow the natural and treated history of hepatitis C in people infected through blood and blood products administered in Ireland and to evaluate the impact of various host and virus factors on disease progression. **Coverage:** Consenting patients, and patients who have died, 77% of eligible patients. National data collection, initially carried out annually, subsequently moved to periodic rounds of data collection (once every 2-4 years). Most recent data collection was 2018.
Data collected from medical records in Specialist Hepatology units across the country by a HPSC Research Nurse. Consent is required for all living patients. Data were initially collected annually, but subsequently changed to periodically. The most recent period was for data from 2014 to the end of 2017 (covering a 4-year time period).
Non-fatal incidents and dangerous occurrences are self-reported (i.e. reported by employers and self-employed persons). Fatal incidents can be reported by employers, self-employed persons, or An Garda Síochána. Notifications should be sent via a standard form available here https://www.hsa.ie/eng/Publications_and_Forms/Forms/ and are submitted to the Authority’s Contact Centre. **Purpose:** The HSA collects data on accidents at work as part of its requirement to comply with the Framework Directive 89/391/EEC (1) on measures to encourage improvements in the safety and health of workers at work. The European Statistics on Accidents at Work (ESAW) methodology specifies the information that is to be collected by the HSA. In addition, Under the Safety, Health and Welfare at Work (General Application) Regulations 2016 all employers and self-employed persons are legally obliged to report **Coverage:** Under the Safety, Health and Welfare at Work (General Application) Regulations 2016, all employers and self-employed persons are legally obliged to report the injury of an employee as a result of an accident while at work. Injuries must be reported if the employee is unable to carry out their normal
Work Related Fatal and Non-Fatal Incident Database Previously Work Related Injuries Database
Notifications should be sent via a standard form available here https://www.hsa.ie/eng/Publications_and_Forms/Forms/ and are submitted to the Authority’s Contact Centre. Notifications are sent on a continuous basis (as incidents arise).
The National Drug-Related Deaths Index is an epidemiological database which records drug- and alcohol-related deaths, and deaths among people who used drugs and among alcohol dependent persons in Ireland. **Purpose:** Epidemiological monitoring of drug- and alcohol-related deaths, and deaths among people who use drugs and among alcohol dependent persons in Ireland. The objective of the Index is to provide high quality data so that the State can respond in a timely manner with accurate data on drug-related mortality. Does not include deaths caused by the drug or alcohol use of another person if the deceased does not meet the NDRDI inclusion criteria above. Does not include deaths due to medical misadventure **Coverage:** National coverage. Data is collected annually. Example of temporal coverage: 2017 data was collected between September 2018 to May 2019 and published in December 2019.
National Drug-Related Deaths Index (NDRDI)
NDRDI staff manually collect data on an annual basis from closed coronial files relating to all deaths where a history of drug use and or alcohol dependency was recorded or where drug or alcohol was implicated in the death. Data from the other agencies is submitted in electronic format on an annual basis.
Designated severe maternal morbidity coordinators within all maternity units collate and submit data on women experiencing specific severe maternal morbidities and /or who require a higher level of care to the NPEC using a specific, detailed notification form. **Purpose:** To investigate the incidence and cause of severe maternal morbidity (SMM) in Ireland. Further, to investigate the location of maternal care for women requiring higher levels of care. This will assist in informing clinical practice, public health interventions and counselling of prospective mothers. As major obstetric haemorrhage (MOH) continues to be the leading cause of SMM the NPEC commenced the MOH audit nationally in 2021. **Coverage:** National Audit all 19 maternity units are participating. Data collection commenced in 2011 and is ongoing.
National Audit of Severe Maternal Morbidity (Severe Maternal Morbidity Audit)
SMM data is submitted either via the secure online NPEC database, or alternatively by paper format.
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. **Purpose:** To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate cancer in Ireland. The data is used to generate reports and scientific publications for the public, researchers, clinicians, hospitals and National Cancer Control Programme on prostate cancer care in Ireland. **Coverage:** National. The data was collected from 16 hospitals, 9 public and 7 private hospitals. The collection began in February 2016 and was completed in January 2020.
Irish Prostate Cancer Registry of Ireland (IPCOR)
Research officers employed by IPCOR through the National Cancer Registry Ireland register men in 16 hospitals across Ireland and collect the IPCOR clinical dataset. Eligible men are then contacted by the National Cancer Registry Ireland on behalf of IPCOR and asked to complete quality of life questionnaires before their treatment begins. Clinical follow up data was collected annually. Up to three years follow up data was collected.
Clostridioides difficile infection (CDI) became a notifiable disease in May 2008. In August 2009, HPSC began collecting enhanced surveillance data on all CDI cases from acute hospitals on a voluntary basis. The enhanced surveillance collects information on both new and recurrent cases and also on the onset and origin of cases. Data is reported back to participants on a quarterly basis to enable hospitals monitor trends over time. **Purpose:** To provide the best possible information for the control and prevention of infectious diseases, by providing timely information and independent advice, and by carrying out disease surveillance, epidemiological investigation and related research and training. In scope: Includes healthcare (public and private hospitals and long-term care facilities) and community associated cases. Out of scope: Infection in children under 2 years of age. **Coverage:** Participation of hospitals is voluntary. In Q1 2022, 60 acute public (n=48) and private (n=12) hospitals provided data. Data collection start date in August 2009.
Clostridioides difficile infection enhanced surveillance
Participating hospitals email their data quarterly using an Excel spread sheet. Transmission is encrypted.
The sentinel GP surveillance system is a collaborative surveillance project involving sentinel GPs, the Health Protection Surveillance Centre, the Irish College of General Practitioners (ICGP) and the National Virus Reference Laboratory (NVRL). Currently, the sentinel GP network monitors patients consulting with influenza-like illness (ILI)/COVID-19 symptomatic patients. The influenza and COVID-19 case definitions are published on the HPSC website. A combined nasal and throat swab is taken from symptomatic patients and sent to the NVRL for PCR testing for influenza, SARS-CoV-2, RSV and ORVs. HPSC collate and analyse clinical, epidemiological and laboratory data and produce weekly/monthly surveillance reports. **Purpose:** 1. Monitor COVID-19/influenza-like illness (ILI) disease incidence in the community 2. Provide an early warning system for the circulation of influenza virus, SARS-CoV-2, respiratory syncytial virus (RSV) and other respiratory viruses (ORV) with epidemic/pandemic potential 3. Monitor the epidemiology of COVID-19, influenza, RSV and ORV in the community and to determine which age groups and risk groups are most affected, so that targeted public health interventions (vaccines and antivirals) can **Coverage:** Data collection commenced in 2000. Data collection is weekly (Monday-Sunday) and runs year-round. As of 8th August 2022, the Irish sentinel GP network comprised of 61 general practices (including 173 general practitioners) nationally and covered approximately 6.9% of the national population (2016
Sentinel GP respiratory surveillance Previously Sentinel Flu Surveillance
Participating sentinel GPs report a basic dataset on ILI clinical consultations each week to the sentinel GP coordinator. The sentinel GP coordinator collates the data and reports it to HPSC each week. These data are used for calculating sentinel GP ILI consultation rates. A more detailed epidemiological dataset is reported on Healthlink as part of the sentinel GP COVID-19 referral process, which at the time of publication was integrated into processes for COVID-19 community testing centres. HPSC access these referral data via the Healthlink reporting portal. Virological data from the sentinel GP network are reported to HPSC from the NVRL each week. Clinical, epidemiological and virological data are formatted and validated, analysed and reported by HPSC.
HPSC communicates regularly with each paediatric hospital /unit to request and remind clinicians on the need to report all AFP cases in children aged less than 15 years of age. The completed forms are sent to HPSC. Anonymised copies are then subsequently forwarded to the NVRL. HPSC collates the data each year and usually reports to the National Polio elimination Committee. A report may also be provided on the HPSC website and in the Epi-Insight monthly newsletter issued by the HPSC. (Note in 2021, two cases of APF cases were reported with no final diagnosis and no enhanced surveillance forms completed). **Purpose:** In Scope: To provide information on children aged less than 15 years of age presenting to Irish hospitals with acute flaccid paralysis. This information is used to ensure that all AFP cases in children are adequately investigated and to out-rule polio as a cause of the paralysis – this is in line with WHO recommendations that all countries should heighten surveillance to ensure that no polio cases are undetected. **Coverage:** Children aged less than 15 years of age from all regions of the country. Case surveillance is monitored on on-going, annual basis.
Acute Flaccid Paralysis (AFP) surveillance
Preliminary data is collected whenever a new case is reported and later, a surveillance form is completed by the relevant hospital which is then faxed or emailed to HPSC where the details are entered into an Access database.
Data on antimicrobials dispensed by hospital pharmacies, and antimicrobials purchased by community pharmacies, are collected and converted into a standardised measure using the World Health Organization ATC/DDD classification. **Purpose:** In scope: To support overall multi-faceted strategy for the control and prevention of infectious diseases by providing standardised measure of antimicrobial consumption for acute hospitals and community setting. **Coverage:** 42 public acute hospitals participating; coverage of primary care is over 95%. Data collected on monthly basis where possible, else quarterly.
Surveillance of antimicrobial consumption in Ireland
Hospitals pharmacies send data directly to HPSC by quarters or by months where possible; a secure online tool (MicroB) is available to assist remote uploading and analysis. Primary care data are received on a monthly basis from IMS Health.
Identify, record, analyse, and store information relating to the prevalence, incidence, and treatment of interstitial lung disease (ILD) in the Republic of Ireland. This will allow us to provide data on the long term prognosis of ILD in the Republic of Ireland, and to compare this information with international data. We will particularly focus on Idiopathic Pulmonary Fibrosis (IPF) in view of recent and international developments in this disease. Provide a framework on which to develop strategies in the evaluation of novel treatments in ILD and facilitate treatment of these patients in a fair and appropriate manner. Promote and facilitate the use of clinical data in approved research projects, relating to the causes, distribution, treatment, and outcome of ILD in the Republic of Ireland Enhance and develop important dialogue and information streams to the Health Service Executive in Ireland that will assist in the planning and management of health services and essential resources for ILD in Ireland. **Purpose:** The main objective of the ILD Registry of Ireland is to provide for the relief of sickness, suffering, and distress, and to advance education by collecting and analysing information relating to interstitial lung disease in Ireland, which can be used to facilitate research and provide accurate reports in order to monitor and improve treatments which will contribute to the quality of care of persons with interstitial lung disease. **Coverage:** National. The Registry is currently not actively collecting data due to the impact of COVID-19 but plans to resume collection in 2022 are underway and it will be for a three year period.
Irish Thoracic Society Interstitial Lung Disease Registry
Data is inputted to the registry via a standard web browser. Data is stored in a central system which can be accessed by the ITS only. Data is collected monthly.
CompStat is a web-enabled performance management and reporting system which operates on a monthly cycle including a monthly performance forum process involving all stakeholders wherein the HSE Regions (Dublin Midlands, Ireland East Hospital Group, RCSI Hospital Group, UL Hospital Group, Children’s Hospital Group, South/South West Hospital Group and Saolta) are the locus of performance control. The purpose of CompStat is to build around a balanced accountability framework of quality, access and resources and incorporates a scorecard performance report on a suite of relevant metrics. CompStat focuses on acute hospitals metrics from an inpatient, out-patient and day-case perspective, waiting list data, clinical programme data. **Purpose:** The purpose of Compstat is to enable monthly management of hospital performance using a scorecard performance report on a suite of relevant metrics. **Coverage:** 51 public hospitals. Data collection commenced in 2012 and is ongoing.
Data is submitted on a monthly basis from the teaching, regional and general hospitals to the HSE CompStat office. This data collection is supplemented by other primary data sources covering hospital services.
Vaccines in the primary childhood immunisation schedule are given by General Practitioners; the returns (records of GP administered vaccinations to patients) are sent to the local HSE Area and recorded on the local database. Each HSE area maintains a childhood immunisation database and since 2000 provides HPSC with immunisation uptake data on a quarterly basis. These data relate to children on the HSE area databases who reached their first or second birthday (uptake at 12 and 24 months, respectively) in that quarter and who received the recommended number of doses of vaccines against diphtheria, pertussis, tetanus, Haemophilus influenzae type b, polio and meningococcal group C, meningococcal group B, pneumococcal conjugate vaccine, rotavirus vaccine, measles, mumps and rubella. HPSC collates the national immunisation uptake data and produces quarterly and annual reports which are available on the HPSC website. **Purpose:** To measure the national uptake of the vaccines recommended as part of the primary childhood immunisation schedule. **Coverage:** National coverage of children 12 months of age and children 24 months of age. Data also reported by Community Healthcare Organisation, (former) HSE Area and Local Health Office.
Immunisation Uptake Statistics at 12 and 24 months of age Previously Immunisation uptake statistics - early childhood
Immunisation uptake data are requested from the HSE areas by HPSC six weeks after quarter end. It is requested that the HSE areas extract the data from their databases within two weeks of this request. Data should be submitted to HPSC as soon as possible after this. The published data are data held on the database on the day of data extraction.
BreastCheck is a Government funded programme providing breast screening to women through a network of four static centres and a number of mobile units. Screening is offered to eligible women by personal invitation for a free mammogram on an area-by-area basis every two years. BreastCheck compiles a register (list) of women eligible for screening from information supplied by the Department of Social Protection (pre-2020 also included other sources of data). BreastCheck is allowed to source this information under The Health (Provision of Information) Act, 1997. **Purpose:** BreastCheck is a Government funded programme providing breast screening and invites women aged between 50 to 69 years for a free mammogram on an area-by-area basis every two years. The aim of BreastCheck is to reduce deaths from breast cancer by finding and treating the disease at an early stage. The purpose of the database is to provide a population register containing demographic data to identify eligible women for the purposes of screening. Clinical data is collected on individuals that recei **Coverage:** National – BreastCheck has completed an age extension project to include all women aged between 50 to 69 years to be invited for routine breast screening every two years. 2000 - Dublin, Wicklow, Kildare, Laois, Offaly, Westmeath, Longford, Cavan, Monaghan, Louth and Meath. 2005 - Addition of Carlow
BreastCheck (The National Breast Screening Programme) Previously BreastCheck (National Breast Screening Register)
Monthly upload of files received from the provider. There is also a BreastCheck website facility for self-registration by women. External agency carries out a de-duplication process every 6 weeks.
Data on bacteraemia caused by selected pathogens is currently collected as part of the European Antimicrobial Resistance Surveillance System (EARS-NET). EARS-NET was enhanced in Ireland to collect demographic, risk factor and clinical data for each EARS-NET isolate reported since 2004. The enhanced programme involves voluntary participation by hospitals that provide data on invasive pathogens causing bloodstream infections. **Purpose:** To provide epidemiological insights into antimicrobial resistance data from key pathogens in order to inform infection prevention and control teams and other policy decision makers. **Coverage:** Voluntary participation (22 laboratories regularly participate accounting for 45% of EARS-Net isolates). Data are collected quarterly.
Enhanced Bacteraemia (Bloodstream infections) Surveillance in Ireland
In Ireland, the system was enhanced to gather additional information including patient risk factors, sources of infection and patient outcome. This is an enhancement of the existing EARS-Net data collection system. Data are collected on a quarterly basis.
Each hospital or long term care facility reports on number of staff vaccinated with influenza vaccine for the current influenza season, the total number of staff employed during the period under review (influenza season) by staff category. Additional information is collected on the uptake of the vaccine among long term and respite residents of LTCFs. The data is currently provided twice during the influenza season (mid-season and end of season). HPSC collates the data and produces a mid-season/provisional and end of season reports which are available on the HPSC website. **Purpose:** In scope: To provide data on influenza vaccine uptake among health care workers (HCWs) working in Irish hospitals and long-term care facilities (LTCFs). **Coverage:** National. Annual surveys to date have been conducted during the official flu season with a request issued for provisional data in early November for mid-December and again in late February for mid-March.
Immunisation Uptake Statistics among health care workers
Each hospital or long term care facility has a contact point. This contact point is sent an email at midseason and end of season with a link to a web-based survey is circulated via email. Healthcare facility managers or designated flu leads input data relating to the number of staff employed and number vaccinated with influenza vaccine by staff professional category, (of which there are six official HSE categories). Data are downloaded in HPSC via the Qualtrics platform, held on an excel database and analysed. Analyses are later published on the HPSC website.
The survey used stratified and multistage area probability sampling methods to select a representative sample of the Irish population that was aged 15 years and older and was living in private households. The primary sampling frame was An Post/Ordnance Survey Ireland’s GeoDirectory, a complete database of every building in the Republic of Ireland. Each of the 2.2 million addresses contained in GeoDirectory includes an accurate standardised postal address, usage details for each building (commercial or residential), a unique 8-digit identity number, Eircode, and geo-coordinates which accurately locate the centre point of each building to within one metre. The sample needed to sufficiently large and structured to provide national estimates of drug use prevalence and estimates for RDATF area. It was calculated that 650 completed interviews in each of the 10 RDATF areas would be required. A three-stage process was used to construct the sample for this survey. Stratification techniques were used to select primary sampling units (PSUs). In this survey, electoral divisions (EDs) were defined as PSUs. In this survey, EDs were defined as PSUs. In the first stage of stratification, the number of addresses for each RDATF was agreed at between 980 and 1,344. In the second stage of stratification, 421 PSUs were randomly selected. These PSUs were then ranked by sociodemographic indicators (degree of urban/rural respondents and proportion of owner occupiers) to ensure that a representati **Purpose:** The National Drug and Alcohol Survey (NDAS) collects information on alcohol and tobacco consumption and drug use among the general population in Ireland. It also surveys people’s attitudes and perceptions relating to tobacco, alcohol, and other drug use and records the impact of drug use on people’s communities. The 2019–20 NDAS collected information from 5,762 people aged 15 years and older across Ireland. Out of scope: health status, treatment interventions, prescribed medications apart from **Coverage:** Prevalence estimates are calculated at a national level and for the 10 Regional Drug and Alcohol Taskforce (RDATF) areas at a later stage. Data collection start February 2019. Data collection finish March 2020.
2019-20 Irish National Drug and Alcohol Survey
The survey data were recorded face-to-face in respondents’ homes using the Computer-Assisted Personal Interviewing (CAPI) technique. The HRB commissioned Ipsos MRBI to undertake data collection. The survey has been repeated every four years since 2002. The previous four surveys were carried out in 2002/03; 2006/07; 2010/11; 2014/15.
The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date information on wait times for in-patient/day-case treatments and outpatient new appointments. **Purpose:** To report on the waiting list for both in-patient/day-case and outpatient patients. Provide statistics and trends. Provide basis for treatment commissioned by NTPF. Data is received from a number of public hospitals. Private hospitals are not included. **Coverage:** 46 Irish public hospitals report to PTR. Data Collection: Dec ’07 – Present.
When a patient is placed on an in-patient/day-case or outpatient public hospital waiting list their details are submitted by secure encryption by the hospital to the NTPF and placed on the PTR. Both Inpatient and Outpatient data is collected every week.
The Paediatric Mortality Register collects and analyses data on all deaths in children <16yrs nationally. Reports provide accurate data on the incidence of all paediatric deaths (aged 28days - 15 completed years);  Deaths by age and gender  Deaths by place of death- hospital v elsewhere  Death by cause of death category  Annual trends in cod categories- highlight lack of decline in suicide rates, stabilisation of SIDS rates, high rates of injury deaths resulting from NAI in young children (parental mental health issue)  Comparison with international data. An element of quantitative analysis relating to the narrative description provided at the end of autopsy reports. **Purpose:** To provide accurate up to date information on mortality in Ireland to include all deaths in children <16yrs but does not include deaths occurring in maternity hospitals. In scope: In-hospital deaths of children aged up to 15 completed years. Out of scope: children who die outside of hospital, children who die in maternity hospitals. **Coverage:** National data collected on children <2yrs from 1992. Scope of data collection extended to all children <16yrs, initiated in CHI at Temple St and CHI at Tallaght in 2019 and is ongoing with objective to extend to all units nationally.
National Paediatric Mortality Register (NPMR)
Complete notification form forwarded directly to NOCA by hospital. CSO provides quarterly metadata files of deaths registered. Coroners provide post mortem results. All data is coded and entered in the register’s database. A coding system is used in order to assist with transfer of data into the statistical software package used for analysis. All data entry, statistical analysis, database management and reporting of results is carried out by NOCA NPMR personnel only. Ongoing annual surveillance means that effects and changes in paediatric death are monitored as they occur, with demographic factors documented alongside.
ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-modulatory therapy (e.g. ciclosporin, azathioprine, methotrexate or biologic treatments). The study aims to monitor patients for at least 12 months but if possible for 10 years. The study is observational and does not involve a study specific intervention. Patient contact will be involved to take explicit consent for participation. During the observation period, participants will be assessed on a regular (3-6 monthly basis) to collect data on disease severity and other clinical outcomes (such as quality of life), adverse events, reasons for potential changes in therapy and key healthcare resource use (e.g. hospitalisations, specialist and GP visits, and drug use). The latter will form part of the health economic feasibility assessment, which will also examine the potential use of HES and CPRD data for health economic evaluation purposes. The study outcomes are based on the results of a recent international consensus exercise – TREatment of severe Atopic eczema Taskforce (TREAT). The first study visit occurs at enrolment (baseline visit, V1). V2 and V3 will be scheduled for 4 weeks and 16 weeks and three-monthly thereafter while on systemic therapy. After systemic treatment cessation, patients will be seen at 6-monthly intervals. **Purpose:** The Irish Atopic Eczema Systemic Therapy Register (ASTAR) is a multicentre, prospective, observational clinical registry of paediatric and adult patients on systemic immuno-modulatory therapies. The primary objective is: to establish the short- and long-term effectiveness of systemic immune-modulatory therapies in adults and children. Secondary objectives include clinical data collection to: • assess the short- and long-term safety (pharmacovigilance) of atopic eczema therapies, for instance w **Coverage:** National and the study duration is ongoing.
The Irish Atopic Eczema Systemic Therapy Register (ASTAR)
Enrolment in the registry is subject to a process of gaining informed explicit consent from patients or their parents or carer (if under 18). Participation is voluntary. The data is then collected from the patients charts after their standard clinic visits and entered onto the registry platform. Data is collected from patient medical charts and input into a secure internet-based computer database. Data collection is undertaken by EB registry data collectors. Data is collected on a continual basis throughout the year and EB data collectors collect data on an encounter basis.
The National Cancer Registry has been collecting comprehensive information on cancer and related tumours for the resident population of the Republic of Ireland since 1994. The information collected is used in research into the causes of cancer, in education and information programmes, and in the planning of a national cancer strategy to deliver the best cancer care to the whole population. **Purpose:** The purpose of the National Cancer Registry is;  to identify, collect, classify, record, store and analyse information relating to the incidence and prevalence of cancer and related tumours in Ireland;  to collect, classify, record and store information in relation to each newly diagnosed individual cancer patient and in relation to each tumour which occurs;  to promote and facilitate the use of the data thus collected in approved research projects and in the planning and management of se **Coverage:** The National Cancer Registry of Ireland covers the Republic of Ireland. Collection of population-based incidence data for the entire country commenced in January 1994.
The NCRI receives data electronically from the following sources  Monthly or quarterly electronic feeds from histopathology labs  Quarterly, biannual or annual  electronic feeds from radiotherapy units  Quarterly electronic feed from the Hospital In Patient Enquiry (HIPE) system  Quarterly electronic feed from the Central Statistics Office (CSO). Approximately 90% of tumours are created electronically and are followed up manually. The remainder of tumours are created from paper based sources. Cancer Data Registrars (CDRs), assigned to hospitals around the country, access a range of data sources to follow up all new cancers and register all relevant patient, tumour and primary treatment details on the NCRI Cancer Registration System (CRS). The NCRI is provided with all death certificates from the Central Statistics Office (CSO). Tumours initially notified by death certificate (DCI) are followed up with the hospital of death and most tumours are subsequently confirmed from oth
MHC collects and reports on demographic and administrative data in relation to the use of seclusion, mechanical restraint and physical restraint in approved centres nationally. **Purpose:** The Commission was established in 2002. They are an independent body and their functions are set out by law in the Mental Health Act 2001. Their main functions are to promote, encourage and foster high standards and good practices in the delivery of mental health services and to protect the interests of patients who are involuntarily admitted. The Mental Health Commission is responsible for regulating and monitoring mental health services. Data on the use of seclusion, mechanical restraint and **Coverage:** National - all approved centres that use seclusion or restraint. Collection started 01/01/2008 and is ongoing.
Use of Seclusion, Mechanical Restraint and Physical Restraint in approved centres
Data are extracted from registers and clinical practice forms in approved centres and returned on prescribed data collection templates to the MHC on annual basis. MHC stores the information on its password protected information system or in a secure electronic file management facility. Data collection occurs when information is submitted to MHC by clinicians or administrative staff in approved centres. Staff in approved centres are required to submit this data within 7 days of the event.
NASS contains national data relating to HSE disability-funded services provided to service users. Data is recorded by service providers, both HSE and non-HSE. **Purpose:** To collect data on the HSE-funded disability services that people use or require in a 5-year period. New services provided to service users aged over 65 years are out of scope as these are managed by HSE Older Persons’ rather than Disability services. **Coverage:** National. NASS data collection is carried out on an annual basis.
Trained users within HSE and non-HSE organisations who provide HSE disability-funded services record information about their service users and the services they receive or require in the web-based system. Each user record is reviewed annually. Data may be recorded manually or uploaded to the system in a file containing multiple records. The data collection period runs from January/February to end December each year.
Datasets of key performance and activity metrics and indicators defined for Tusla services as follows: - Child Protection and Welfare Services; - Alternative Care Services (incl. foster care, residential care, aftercare, adoption); - Family Support Services; - Tusla Education Support Services; - Children’s Services Regulation (Early Years Inspectorate, Alternative Education, Assessment & Registration Service; Alternative Care Inspection & Monitoring Service) - Human Resources - Finance **Purpose:** To comply with statutory reporting obligations; measure and monitor performance of the operational system; improve service delivery and outcomes for children and families engaging with services; inform policy and research and provide information (accountability) to the public. **Coverage:** National / Tusla Regional / Tusla Area level. Publication of the data in its current format commenced in 2014 when Tusla was established and is ongoing.
Tusla - Performance and Activity Datasets
Data recorded on Tusla’s National Child Care Information System (NCCIS) is extracted directly from the system for reporting / publication. Data not recorded on NCCIS is collected at an area / service level and submitted by e-mail to the Performance Reporting Function of the Quality & Regulation Directorate for collation, analysis and publication. Data is collated on a monthly / quarterly and annual basis (depending on the dataset).
The Repository contains public health resources from across the Island of Ireland, providing access to a broad range of health information resources from organisations including the IPH, Department of Health (Ireland), Department of Health (NI). **Purpose:** To provide access to health information resources that are needed to develop systems-wide solutions to improve population health and wellbeing, tackle health inequalities and address the social determinants of health (SDH) across the island of Ireland. We focus on promoting health and wellbeing, improving health equity, and reducing health inequalities throughout the life course. The Institute has researchers and policy specialists from a range of disciplines based in offices in Dublin and Bel **Coverage:** Republic of Ireland, Northern Ireland, United Kingdom. 1998 to date.
Institute of Public Health Repository Previously All Ireland Public Health Repository
Resources are managed by the Institute of Public Health in Ireland.
The Irish Hip Fracture Database (IHFD) is a web based system that uses the HIPE (Hospital In-patient Enquiry) portal infrastructure. It audits care standards and outcomes for patients with hip fractures. **Purpose:** Develop a prospective audit of case-mix, care standards and outcomes for hip fracture care and use synergy of standards, data, feedback and quality improvement to focus attention on hip fracture care locally and nationally. It benchmarks care and uses data to create a drive for sustained improvements in clinical standards and cost-effectiveness. IHFD objectives can be found at this link: https://www.noca.ie/audits/ihfd-objectives In scope:  All hospitals that provide acute hip fracture ser **Coverage:** National - all acute hospitals that operate on hip fracture patients (16 Hospitals in total). Coverage is based on discharges within the calendar year for example 1/1/22-31/12/22. The percentage of patients with HIPE episodes for hip fracture with data coded on the IHFD are included. The HIPE syste
Data is taken from the medical record by clinical staff with permitted access and inputted into the IHFD add-on screen on the HIPE portal. Data can be entered while the patient is an in-patient and completed on discharge. Data entry is requested to be complete within the quarter following discharge from hospital. All data must be submitted by the close of the HIPE file, usually one quarter after end of calendar year. A data collection/ reporting calendar with quarterly targets is used each year for the hospitals to align their data entry to.
An Individual Health Identifier or IHI is a number that uniquely and safely identifies each person that has used, is using or may use a health or social care service in Ireland. It will last for your lifetime and will never be re-issued to anyone else. The Health Identifiers Act enacted in July 2014 allows for the creation and operation of a unique health identifier for any person using a health or social care service in Ireland. The Minister for Health has delegated the authority to create and operate the IHI to the Health Service Executive (HSE). The purpose of the IHI is to accurately identify everyone so that health and social care can be delivered to the right person, in the right place and at the right time. The IHI can be used to identify an individual correctly and allow those who are delivering services to them to be assured that they have relevant information for the right person. The ultimate benefit of having an IHI for those who use health and social care services is safer and better quality care. **Purpose:** With the enactment of the Health Identifiers Act in 2014, residents and former residents in Ireland with a Personal Public Services Number (PPSN) were and are given an Individual Health Identifier (IHI) number. It is used to uniquely identify each person engaging with the Health Service Executive and relevant social care agencies. The main benefit of having an IHI is to ensure patient safety by correctly identifying a patient. Your IHI will help to improve the accuracy in associating your medi **Coverage:** National. Data collection began in 2016 and is ongoing.
National Register of Individual Health Identifiers
Daily demographic feeds from the Department of Social Protection.
OECD Health Data, maintained by the OECD, enables analyses and lessons to be drawn from comparisons of the healthcare systems of the 35 member states. **Purpose:** The purpose of this data collection is to provide a comprehensive source of comparable statistics on health and health systems across OECD countries. It is an essential tool for health researchers and policy-makers, the private sector and the academic community, to carry out comparative analyses and draw lessons from international comparisons of diverse healthcare systems. **Coverage:** Thirty-five member states of the OECD.
Organisation for Economic Co-operation and Development (OCED) Health Data* (2017 template)
Production of OECD health data is by contribution from national health data correspondents (i.e. for Ireland the Department of Health) and health accounts experts (for Ireland the CSO) in the OECD member states. In addition to above, data is transmitted annually to Eurostat, OECD and the WHO by means of the ‘Joint Data Collection on non-Monetary Health Care Statistics’. This joint data collection is a harmonised approach developed by Eurostat, OECD and WHO in order to reduce the data collection burden on countries.
The Major Trauma Audit (MTA) will provide a framework for hospitals to collect standardised data on patient injury, care processes and patient outcomes. The National Office of Clinical Audit (NOCA) will provide the frameworks and operational support for the introduction of MTA in Ireland, through participation in the UK Trauma Audit and Research Network (TARN). TARN is based on web-enabled collection of a standardised dataset for patients who are admitted to hospital or die in the Emergency Department (ED) with centralised analysis and benchmarking of data undertaken at TARN based in the Manchester Academic Health Science Centre University of Manchester. **Purpose:** Aim: The MTA will drive system-wide quality improvement to achieve the best outcomes for trauma patients in Ireland. MTA objectives can be found at this link: https://www.noca.ie/audits/mta-objectives Scope: 1. All trauma patients irrespective of age 2. who fulfil one of the following length of stay criteria: a Direct admissions  Trauma admissions whose length of stay is 3 days or more  Trauma patients admitted to a High Dependency Area regardless of length of stay  Deaths of trauma patie **Coverage:** National- all acute hospitals that receive major trauma (26 hospitals in total). Coverage is based on discharges within the calendar year for example 1/1/22-31/12/22. The percentage of patients with HIPE episodes with trauma codes (ICS 10-AM S and T codes) that fulfil the length of stay criteria fo
Hospital-level MTA audit co-ordinators submit data on a web-based data collection and reporting system. Data is taken from the medical record and electronic patient systems by clinical staff with permitted access and inputted into TARN. Data can be entered while the patient is an in-patient and completed on discharge. Data entry is requested to be complete within the quarter following discharge from hospital. A data collection/ reporting calendar with quarterly targets is used each year for the hospitals to align their data entry to.
Diabetic RetinaScreen maintains a population register containing demographic data of the eligible people diagnosed with Type 1 or Type 2 Diabetes aged 12 years and over for the purposes of call/recall annual screening. It also contains clinical data in order that those who require treatment can be contacted for follow-up treatment and clinical referral recommendations. **Purpose:** The primary goal of the Diabetic RetinaScreen Programme is to reduce the risk of sight loss among people with diabetes by the early detection and treatment of sight –threatening retinopathy. The purpose of the database is to provide a population register containing demographic to identify eligible people for the purpose of screening. The database also contains clinical data in order that those who require treatment can be contacted for follow-up treatment and clinical referral recommendations. **Coverage:** National - for people diagnosed with Type 1 or Type 2 diabetes aged 12 years and over. Children (aged 12 years and over) Women and Men who are diagnosed with Diabetes can be added to the register via two pathways: 1. Notification from their General Practitione
Diabetic RetinaScreen (The National Diabetic Retinol Screening Programme) Previously Diabetic RetinaScreen (National Screening Register)
Initially files were imported from PCRS. Data collection can be facilitated by self-registration and registration by health professionals, contacting the call centre.
Under Section 33(3) of the Mental Health Act, 2001, the Mental Health Tribunals Division of the Mental Health Commission is responsible for establishing mental health tribunals for patients admitted on an involuntary basis. MHC collects demographic and clinical involuntary admission data, in relation to adults, in order to fulfil this statutory function. **Purpose:** The Commission was established in 2002. They are an independent body and their functions are set out by law in the Mental Health Act 2001. Their main functions are to promote, encourage and foster high standards and good practices in the delivery of mental health services and to protect the interests of patients who are involuntarily admitted. The Mental Health Commission is responsible for regulating and monitoring mental health services. Data on the involuntary admissions of adults to approve **Coverage:** National – all involuntary admissions to approved centres.
Involuntary Admission Activity (Adults)* (2017 template)
A suite of statutory forms are used by centres approved under the Mental Health Act 2001 to notify the Commission of the required information relating to each involuntary patient. Information is held in their ‘System for Involuntary Admission and Tribunals’ (SIAT).
Designated data coordinators within all maternity units collate and submit data on Robson TGCS to the NPEC. **Purpose:** The Robson Ten Group Classification System (TGCS) is a classification system by which all perinatal events and outcomes can be compared. The system classifies all pregnant women into one of ten groups, each of which are mutually exclusive and, as a set, comprehensive. This system has been used extensively internationally to analyse caesarean deliveries. In 2015, the World Health Organization (WHO) endorsed the Robson TGCS as the global standard for assessing, monitoring, and comparing CS rates **Coverage:** All 19 units collected data in 2020 for Robson TGCS.
National Maternity data- Robson Ten Group Classification system (TGCS)
Data is submitted on an excel template frequencies varies across units.
For the national neonatal TH review, medical records are the primary source of information. Data were collected on site in the 19 maternity units/hospitals and neonatal intensive care units or special care baby units (NICU/SCBU) in the Republic of Ireland. The NCPPN, NPEC and NWIHP collected data on all cases of neonatal therapeutic hypothermia in 2019 by taking an active case ascertainment approach. **Purpose:** The purpose of the Audit is to present an overview and national statistics of Neonatal Therapeutic Hypothermia. TH is now considered the standard treatment for term infants with moderate to severe HIE. It is a therapy during which the infant is cooled within six hours of birth to a targeted core body temperature of between 33°C to 34°C for a duration of 72 hours. Following the 72-hour period, the infant is rewarmed to normal body temperature over a 6-12 hour period. Encompassing data on all case **Coverage:** National coverage: involves every infant who underwent TH in Ireland. Data is collected on an annual basis starting on the 1st of January and finishing on the 31st of December.
Data is collected by the national neonatal TH co-ordinator on site in the 19 maternity units/hospitals and neonatal intensive care units from medical records. Data is uploaded to the electronic register hosted by the NPEC and the data is processed. Data is submitted on the secure online NPEC database on an annual basis.
The Irish MND register includes all known patients diagnosed with MND each year. It dates back to 1994 and it now has clinical information from over 2,300 patients. On average 110 new cases per annum, with 300 people affected at any one time. A DNA bank was added in 1998. This bank contains samples from over 1250 patients. **Purpose:** The purpose of the Register is to track the incidence, prevalence and clinical features of MND in the Irish population. The Register aims to gather a relatively narrow capture of key variables on all MND patients which help us describe the population. More detailed information is gathered through cohort studies to which people identified through the Register are consented separately. **Coverage:** All known patients diagnosed with MND each year in the Republic of Ireland. Temporally data is collected from a person with MND as soon as they consent to be included which is generally shortly after they are diagnosed. Data collection is actively continued, mainly through the health record until t
HIPE departments in all major hospitals are searched using ICD-9 to ascertain and confirm all MND diagnosis. The Central Statistics Office (CSO) Deaths Register is searched using ICD-9 primarily to capture MND cases where the subject passed away shortly after diagnosis. The register is based on direct nationwide chart review/ confirmation by the diagnosing physician.
The Global Health Observatory (GHO) is WHO’s portal providing access to data and analyses for monitoring the global health situation. It provides critical data and analyses for key health themes, as well as direct access to the full database. The GHO presents data from all WHO programmes and provides links to supporting information. **Purpose:** To provide easy access to country health data and statistics with a focus on comparable estimates and to WHO’s analyses to monitor global, regional and country situation and trends. **Coverage:** The 194 members of the WHO. 2009 to present.
World Health Organization Global Health Observatory Previously WHO Global Health Observatory
Annual compilation of data from the member states. Includes a hundred data sets with different modalities of collection (from topic-specific surveys sent to key informants, to household surveys and statistical reports).
This is a register for all patients who attend Galway University Hospital and undergo thoracic surgery. **Purpose:** To measure the quality of care of adult thoracic surgery and provide information for quality improvement and research. To encourage improvement of clinical outcomes for patients and to promote the importance of integrating quality improvement initiatives into daily clinical practice. All thoracic surgical procedures performed by the team at Galway University Hospital. **Coverage:** All patients who attend Galway University Hospital for thoracic surgery. Galway University Hospital is a tertiary referral hospital and part of the Saolta Hospital Group which covers a large geographical area in the West and North West of Ireland serving a population of over 700,000 people within it
National Thoracic Surgery Outcomes Data previously included under Cardiac Surgery Registry- Galway
Data is submitted to the SCTS research team. Annual basis (financial year).
Admissions of children to Approved Centres are notified to the Mental Health Commission. ‘‘Child’’ means a person under the age of 18 years other than a person who is or has been married; Section 25 Mental Health Act 2001. **Purpose:** The Commission was established in 2002. They are an independent body and their functions are set out by law in the Mental Health Act 2001. Their main functions are to promote, encourage and foster high standards and good practices in the delivery of mental health services and to protect the interests of patients who are involuntarily admitted. The Mental Health Commission is responsible for regulating and monitoring mental health services. Data on the admission of children to approved centres a **Coverage:** National – all approved centres that admit children. Collection started 01/11/2006 and is ongoing.
Admissions of Children to Approved Centres
Data are extracted from medical charts or records in approved centres and submitted on a secure online system by clinicians or administrative with an individual user account. The secure online system is operated by MHC staff who also have individual user accounts. Data collection occurs when information is submitted to MHC by clinicians or administrative staff in approved centres. Staff in approved centres are required to submit this data within 7 days of admission to an approved centre and within 72 hours of discharge from an approved centre.
The Irish National Audit of Stroke is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for patients with stroke. **Purpose:** Aim: To conduct audit of stroke care including clinical care and service organisation. INAS objectives can be found at this link: https://www.noca.ie/audits/inas-objectives In scope:  All hospitals that provide acute stroke services, n=24  All patients with principle diagnosis ICD 10 AM codes i61 (haemorrhagic stroke), i63 (Ischaemic stroke), i64 (stroke unspecified) or with a hospital acquired diagnosis (HADx) of ICD 10 AM codes i61, i63, i64  All cases reported are >16 years of age  Fo **Coverage:** National. All hospitals that provide acute stroke services, n=24. Coverage is based on discharges within the calendar year for example 1/1/22-31/12/22. The percentage of patients with ICD 10 AM codes i61, i63, i64 discharged from each of the 24 hospitals who have >80% of those cases with additional
Data is taken from the medical record by audit coordinators (senior nursing staff) with permitted access and inputted into the HIPE stroke audit portal. Data can be entered while the patient is an in-patient and completed on discharge. Data entry is requested to be complete within the quarter following discharge from hospital. All data must be submitted by the close of the HIPE file, usually one quarter after end of calendar year.
The Operational Performance and Integration Unit collates the HSE’s Performance Reports (PR), which provide an overall analysis of key performance data from Finance, HR, Hospital and Primary and Community Services. The activity data reported is based on Performance Activity and Key Performance Indicators outlined in the National Service Plan 2022. The performance report is overseen by the National Planning Oversight Group (NPOG), led by the Chief Operating Officer on behalf of Director General to monitor performance against planned activity, as outlined in the National Service Plan, and to highlight areas for improvement. A Management Data Report is also produced each month which provides more detailed data on the metrics covered in the Performance Report. The HSE have agreed a number of metrics/indicators for acute hospitals including Clinical Programmes, National Ambulance Service and National Cancer Control Programme. The full list of these metrics/indicators can be found on the HSE website: http://www.hse.ie/eng/services/publications/KPIs/ Items such as acute care in medicine and surgery, average length of stay, inpatient and day case waiting time are included as indicators. Examples of an indicator include: • % of adults waiting <12 months for an elective procedure (inpatient); • Percentage of emergency re-admissions for acute medical conditions to the same hospital within 30 days of discharge. **Purpose:** To monitor hospital activity. Collection of data assists in performance improvement and is an integral part of monitoring activity in the service planning process. **Coverage:** All acute hospitals. Data collection commenced in 2006 and is ongoing.
HSE Performance Reports- Acute Hospitals including Clinical Programmes, National Ambulance Service and National Cancer Control Programme
Data collected to support these indicators is a combination of collecting primary data and data from national data collections. Primary data is submitted from all hospitals to the Business Information Unit on a daily, weekly and monthly basis via email and data transfers. Data is also sourced from national data collections such as the Delayed Transfer of Care Web browser directly from hospitals, National Treatment Purchase Fund, NCCP, National Stroke Register, Hospital In Patient Enquiry and NAS.
Cloud based National electronic record for all people with haemophilia and other related bleeding disorders. Interfaced to St James’s Hospital Patient Administration System/EPR (St James’s Hospitals electronic patient record). Also accessed by Children’s Health Ireland at Crumlin, Cork University Hospital and Galway University Hospital. The data collection operates as an individual electronic health record but is also searchable as a National Register for Haemophilia and related bleeding disorders. **Purpose:** To maintain a national electronic record for all people with haemophilia and other related bleeding disorders in Ireland. **Coverage:** This is a National Register and includes three Comprehensive Care Centres and one Haemophilia Treatment Centre. Data collections stats from 2005 but may include earlier dates if uploaded. There is no finish date as data collection is on-going.
National Coagulation Centre (NCC), St. James’s Hospital, James’s Street, Dublin
Data is collected at the point of care in a continuous manner by designated health care staff.
The Irish Unrelated Bone Marrow Registry (IUBMR) is a register of people who are willing to donate their bone marrow/stem cells if they are found to match an unrelated patient needing a stem cell transplant. The IUBMR is part of a worldwide network of unrelated donor registries. **Purpose:** To provide a register of people who are willing to donate their bone marrow/stem cells if they are found to match an unrelated patient needing a bone marrow transplant. Irish Bone Marrow Transplant units which includes CHI, Crumlin and St. James’s Hospital **Coverage:** Voluntary participation. National. Data collection commenced in 1989 and is ongoing.
Irish Unrelated Bone Marrow Registry (IUBMR)
Volunteers who are willing to be searched as potential bone marrow donors for patients can apply to be on the register via an online-form. On-going data collection.
Self Employed Community Midwives (SECMs) in Ireland provide a home birth service on behalf of the Health Service Executive (HSE). Maternity records of midwifery care provided are sent by the SECM to the Designated Midwifery Officer (DMO) in their respective HSE area. The DMO reviews the maternity records then collates the data using a standardised audit tool. **Purpose:** The purpose of the audit is to examine both the maternal and fetal outcomes of planned home births, including outcomes whereby the care of the woman is transferred for hospital care in the antenatal period, during labour or the postnatal period. **Coverage:** National coverage: all planned births with the HSE home birth service are recorded. Data is collected on an annual basis starting on the 1st of January and finishing on the 31st of December.
Data is collected by the SECM and sent to the DMO in their respective HSE area. After reviewing the maternity records, the DMOs collates the data using a standardised audit tool and data is uploaded to the electronic register hosted by the NPEC or is forwarded to the National Perinatal Epidemiology Centre (NPEC) for analysis. Data is submitted on the secure online NPEC database on an annual basis.
CIDR is the information system developed to manage the surveillance and control of notifiable infectious diseases in Ireland. Case-based data on laboratory and clinical notifications are collected on CIDR, which includes:  Vaccine-preventable diseases,  Respiratory (including COVID-19) and direct contact diseases,  Infectious intestinal diseases,  Vector borne and zoonotic diseases,  Blood borne and sexually transmitted infections and  Healthcare associated infections. Enhanced surveillance data (additional detailed data) are also collected on many of the infectious diseases. Summary data on infectious disease outbreaks are also collected in CIDR and individual cases notified on CIDR and associated with an outbreak are linked to the outbreak. The full list of notifiable diseases can be found at www.hpsc.ie. The current list is also specified in S.I. No. 258/2022 - Infectious Diseases (Amendment) Regulations 2022, available at https://www.irishstatutebook.ie/eli/2022/si/258/ **Purpose:** CIDR is used for the statutory surveillance of notifiable infectious diseases in Ireland (including COVID-19) in order to provide the best possible information for the control and prevention of infectious diseases. The objectives of CIDR include: 1. To monitor trends 2. To detect changes in disease occurrence e.g. identify outbreaks and new pathogens 3. To describe the current burden and epidemiology of disease 4. To determine risk factors for the disease and populations at greatest risk 5. To **Coverage:** National. 1988-present (varies depending on when the disease became notifiable and case-base reporting implemented). 1988-July 2000 – aggregate data July 2000 onwards – case-based reporting implemented in Ireland 2004 - Outbreak data included 2004-2010 – CIDR pilot and go-live implementation (excl
Computerised Infectious Disease Reporting (CIDR) system
CIDR is a web-based information system with the data collected held in a single shared national information repository. Data from laboratories are uploaded electronically or entered manually to CIDR by public and some private laboratories. Staff in Departments of Public Health (or in HPSC on behalf of Public Health) process laboratory notifications on CIDR and also input clinical notifications, outbreak data, data from private laboratories and enhanced /epidemiological data collected by Public Health professionals or other healthcare professionals. Thereby laboratory, clinical, epidemiological and outbreak data are linked on CIDR. During the COVID-19 pandemic, a Robotic Process Automation (RPA) solution was implemented on CIDR to assist with the processing of laboratory records and the entering of enhanced data. Once these data are processed on CIDR they are available through the CIDR SAP Business Objects Reporting repository to the relevant Department of Public Health and HPSC (na
The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses and displays to inform decision makers at all levels from clinical practice to policy. Health Atlas Ireland was developed by the National Health Intelligence Unit, HSE. It evolved in collaboration with many agencies including:  Health Service Executive  Health Protection Surveillance Centre - HSE  OoCIO - HSE  Sláintecare  Department of Health  Royal College of Physicians Ireland  Royal College of Surgeons Ireland  Central Statistics Office  Ordnance Survey Ireland  GeoDirectory  University College Dublin  National University Ireland Maynooth  Dublin City University  Trinity College Dublin  Primary Care Eligibility & Reimbursement Service - HSE  Economic and Social Research Institute  Road Safety Authority  An Garda Siochana  Irish Air Corps  Irish Coast Guard. Seed funding was provided by the Health Research Board. **Purpose:** To support the quest for better health for patients, their families and the population by exploiting the quality assurance, health mapping and research potential of available data. **Coverage:** Republic of Ireland. This data collection commenced in 2006 and is ongoing.
Data is made available to Health Atlas Ireland, HSE from the various primary data collections at an agreed cadence.
CervicalCheck maintains a population register containing demographic data of eligible women and people with a cervix aged 25 to 65 for the purposes of screening. The screening interval for women aged between 25 to 29 years is three years and for women aged 30 to 65 years is five years. It also contains clinical data so that women who have had cervical screening tests can be contacted for follow up treatments and clinical referral recommendations. **Purpose:** The overall aim of CervicalCheck is to reduce the incidence of cervical cancer by detecting changes in the cells of the cervix before they become cancerous. The purpose of the database is to provide a population register containing demographic data to identify eligible women for the purposes of screening. The database also contains clinical data so that women who have had screening tests can be contacted for follow-up treatments and clinical referral recommendations. **Coverage:** National – principally women aged between 25 and 65 years, additionally some women aged less than 25 years and over 65 years where there is a clinical requirement. Women and people with a cervix can be added to the register via three pathways: 1. Notification from the Dept. of Social Protection, 2.
CervicalCheck (The National Cervical Screening Programme) CervicalCheck (National Cervical Screening Register)
The processes for data collection are:  a monthly electronic feed in a standard format from Department of Social Protection which is imported into the Register (to update demographics only);  daily electronic feeds from service providers (screening tests results and colposcopy data, web import) and monthly or quarterly softcopy feeds (histology data) which update clinical details but can also update demographic data (in a standard format agreed between CervicalCheck and the service providers)  Updates from women and GP practices via telephone, letter, email or the website to register a woman’s demographics for the programme or to update their existing demographic data.
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient at ED/destination facility. In the event of an ambulance service not utilising the PHECC PCR; the PHECC Information standard contains the data set on which any alternative PCR is designed. **Purpose:** To facilitate: 1) a national framework to record accurate, complete and timely pre-hospital patient data which will provide a vital link in the continuum of patient care in the hospital/destination facility 2) robust national clinical audit 3) strategic planning 4) informs research into new skill, services/equipment. **Coverage:** 2005/2006 (national statutory ambulance services) 2008 (Private, Auxiliary and Voluntary licensed CPG providers with an ambulance service).
Patient information is entered on the 2-part PCR in real time for every patient contact. The PCR must be completed in all circumstances:  All emergency calls  All urgent calls  All calls where a practitioner has to treat a patient  All calls involving refusal of treatment and or transport contrary to the advice given by the practitioner  All calls where patient is treated at scene and not transported. Paper-based system: A PCR copy is included in handover at the Emergency Department (ED)/destination facility and stored with the hospital record/chart. The remaining copy is returned to the licenced CPG provider organisation for storage. ePCR also used by CPG Providers.
CHAIR is a computer register that gathers information on hospital patients admitted with suspected or confirmed acute coronary syndromes in order to improve the delivery of healthcare and to improve patient outcomes on discharge from hospital. Acute coronary syndromes (ACS) include heart attack (myocardial infarction) and unstable angina. In mid-2007 CHAIR adopted the European Cardiology Audit and Registration Data Standards (CARDS) Acute Coronary Syndromes (ACS) dataset and became known as CHAIR/CARDS ACS. **Purpose:** The aim of CHAIR is to gather information on hospital patients admitted with suspected or confirmed acute coronary syndromes (ACS) in order to improve the delivery of healthcare and to improve patient outcomes. Its objectives are:  to record, describe and analyse registered patient demographics, diagnostic and treatment details and hospital outcomes  to facilitate the development of strategies to improve the quality of ACS patient care  to contribute towards the development of a national pla **Coverage:** Pilot in HSE - South (Cork and Kerry and South Tipperary) region. Private hospital participation. Data collection commenced in 2002 and is ongoing.
Coronary Heart Attack Ireland Register (CHAIR)
A CHAIR Registration Officer collects the data at each hospital. CHAIR data (2002 to 2007) was essentially in two forms:  personal data in the local database (within the hospital)  ‘anonymised’ data (no MRN, no name and no address) in the central database (located in Dublin). The personal data in the hospital database is information from the patient medical record. In 2007 CHAIR adopted the European CARDS ACS dataset. This entailed new software (and a new software provider) and the use of web-enabled access with data protected within the HSE South firewall.
All organ donations in the Republic of Ireland are coordinated through the National Organ Procurement Service in the ODTI. Ethical guidelines protect the interests of deceased organ donors, their families, and transplant recipients. **Purpose:** The purpose of this data collection is to have accurate national data on organs procured, transplanted, exported and imported and sent for research. **Coverage:** All organs procured, transplanted, exported and imported in the Republic of Ireland. National data collection started in 2016 by the ODTI and is ongoing. Each year sets starts on the 1st of January and finishes on the 31st December.
National Organ Procurement Service Data Previously National Organ Procurement Service Statistics
Data collated by reviewing the donor files and non conversion donor activity logbook and collating on the data base. Data is collected after each donor and non conversion referral.
Compliance with World Health Organization (WHO) “Five Moments of Hand Hygiene” opportunities by healthcare workers in acute hospitals. Data from hand hygiene audit tools (MS Excel) are collated by HPSC via the MicroB online tool and the results published. **Purpose:** In scope: To support overall multi-faceted strategy for the control and prevention of infectious diseases by providing standardised measure of observational hand hygiene compliance for acute hospitals. **Coverage:** 42 public and nine private acute hospitals contributed to the data in Oct 2021. This represents an even geographical spread across Ireland. Data collected twice per year in May/June and Oct/Nov.
Trained infection and control staff conduct hospital-wide audits of hand hygiene compliance by the facility’s own healthcare workers. Twice yearly (June & Oct) national audits are conducted, of 7 wards per facility with 30 hand hygiene opportunities per each ward audited. Automated data upload, analysis, report generation and approval for publication facilitated via HPSC’s online tool, MicroB.
BowelScreen maintains a population register containing demographic data of eligible men and women aged 59 to 70 for the purposes of screening. It also contains data so that men and women who have completed the BowelScreen home test kit (FIT) can be contacted, if necessary, for follow-up treatment. All eligible men and women aged 59 to 70 are invited every 2 years to complete a home test kit. This age range is being extended. **Purpose:** Bowel screening aims to find bowel cancer at an early stage in people who have no symptoms. If bowel cancer is found early, there is a much better chance of treating it successfully. Screening data collected allows for BowelScreen to maintain a record of key performance indicators pertaining to individual consultant’s clinical performance in screening centres. Monitoring this information is essential to ensure quality assurance for the programme. Screening for adenomas, pre-cancer **Coverage:** National - Men and women aged 59 to 70 Men and women can be added to the register via two pathways: 1. Notification from the Department of Social Protection. 2. Self-register by calling freephone or registering online. Men and women can verify that they are on the register online.
BowelScreen (The National Bowel Screening Programme) Previously Bowelscreen (National Bowel Screening Register)
Files imported monthly from Department of Social Protection and self-registration.