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European School Survey Project on Alcohol and Other Drugs (ESPAD)
Principal source of data on substance use among 15-16 year olds in Ireland, and their gaming, gambling and social media use. Purpose: ESPAD is a collaborative... -
Diabetic RetinaScreen (The National Diabetic Retinol Screening Programme)...
Diabetic RetinaScreen maintains a population register containing demographic data of the eligible people diagnosed with Type 1 or Type 2 Diabetes aged 12 years and over for the... -
National Paediatric Mortality Register (NPMR)
The Paediatric Mortality Register collects and analyses data on all deaths in children <16yrs nationally. Reports provide accurate data on the incidence of all paediatric... -
Health Atlas Ireland
The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses... -
National Haemophilia Register
Cloud based National electronic record for all people with haemophilia and other related bleeding disorders. Interfaced to St James’s Hospital Patient Administration System/EPR... -
Irish Thoracic Society Interstitial Lung Disease Registry
Identify, record, analyse, and store information relating to the prevalence, incidence, and treatment of interstitial lung disease (ILD) in the Republic of Ireland. This will... -
Irish Unrelated Bone Marrow Registry (IUBMR)
The Irish Unrelated Bone Marrow Registry (IUBMR) is a register of people who are willing to donate their bone marrow/stem cells if they are found to match an unrelated patient... -
HIV Antenatal Testing
Antenatal HIV testing for pregnant women. In April 1999, the Department of Health and Children, on the advice of the National AIDS Strategy Committee (NASC), introduced a policy... -
Enhanced Bacteraemia (Bloodstream infections) Surveillance in Ireland
Data on bacteraemia caused by selected pathogens is currently collected as part of the European Antimicrobial Resistance Surveillance System (EARS-NET). EARS-NET was enhanced in... -
Central Treatment List (CTL)
Administrative database to regulate the dispensing of methadone treatment. The Central Treatment List (CTL) was established under Statutory Instrument No. 225 (Minister for... -
National Register of Individual Health Identifiers
An Individual Health Identifier or IHI is a number that uniquely and safely identifies each person that has used, is using or may use a health or social care service in Ireland.... -
Irish Database of Statutory Notifications from Social Care)
The Chief Inspector in HIQA is responsible for regulating nursing homes and residential services for people with disabilities (collectively referred to herein as designated... -
Joint Research Centre (JRC) EUROCAT European Registries of Congenital...
There are three regional congenital anomaly registers in the Republic of Ireland. All are members of JRC EUROCAT, the European network of congenital anomaly registers; they... -
Alpha One Foundation Registry
The Alpha One Foundation was established in 2001 to promote research into Alpha-1, to improve diagnosis, treatment and to improve life expectancy and lifestyle of people with...