Irish Unrelated Bone Marrow Registry (IUBMR)

The Irish Unrelated Bone Marrow Registry (IUBMR) is a register of people who are willing to donate their bone marrow/stem cells if they are found to match an unrelated patient needing a stem cell transplant. The IUBMR is part of a worldwide network of unrelated donor registries.

Purpose: To provide a register of people who are willing to donate their bone marrow/stem cells if they are found to match an unrelated patient needing a bone marrow transplant.

Irish Bone Marrow Transplant units which includes CHI, Crumlin and St. James’s Hospital

Coverage: Voluntary participation.

National.

Data collection commenced in 1989 and is ongoing.

Data and Resources

This dataset has no data

Additional Info

Field Value
Contact points
Contact point 1
URI
Name
Irish Blood Transfusion Service
Email
data@irish-blood-transfus.ie
Identifier
Publisher
Publisher 1
URI
Name
Irish Blood Transfusion Service
Email
URL
Type
http://purl.org/adms/publishertype/NationalAuthority
Identifier
Creator
Homepage
Landing page
Release date January 1, 1989
Modification date May 7, 2024
Version
Version notes
Identifier NDC-0076
Frequency http://publications.europa.eu/resource/authority/frequency/QUARTERLY
Provenance

Volunteers who are willing to be searched as potential bone marrow donors for patients can apply to be on the register via an online-form.

On-going data collection.
Type
Temporal coverage
Temporal coverage 1
Start
January 1, 1989
End
May 25, 2025
Temporal resolution
Spatial coverage
Spatial coverage 1
URI
http://publications.europa.eu/resource/authority/country/IRL
Label
Ireland
Geometry
Bounding Box
Centroid
Spatial resolution in meters
Access rights http://publications.europa.eu/resource/authority/access-right/PUBLIC
Other identifier
Theme
  1. http://publications.europa.eu/resource/authority/data-theme/HEAL
Language
  1. http://publications.europa.eu/resource/authority/language/ENG
Documentation
Conforms to
Is referenced by
Analytics
Applicable legislation
Has version
Code values
Coding system
Purpose
Health category
  1. http://health.europa.eu/ehds/category/registries
  2. http://health.europa.eu/ehds/category/public-health
Health theme
  1. http://health.europa.eu/theme/infectious-disease
  2. http://health.europa.eu/theme/chronic-disease
  3. http://health.europa.eu/theme/public-health
Legal basis
Minimum typical age 15
Maximum typical age 75
Number of records 1829909
Number of records for unique individuals. 450722
Personal data
Publisher note
Publisher type
Trusted Data Holder
Population coverage
Retention period
Health data access body
Qualified relation
Provenance Activity
URI
Qualified Attribution
Quality annotations