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Lifeways Cross-Generation Cohort Study
Lifeways is a unique cohort study, designed to capture Irish longitudinal life-course data, by recruiting three generations of the same family. Participants, who are essentially... -
Irish Prostate Cancer Registry of Ireland (IPCOR)
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. Purpose: To conduct a unique, prospective,... -
Irish National Rare Kidney Disease Registry
Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of... -
TILDA- The Irish Longitudinal Study on Ageing
TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years.... -
Road Fatalities and Injury Collision Statistics
Principal source of data and information on fatal and injury collisions on Irish roads. Purpose: To collect, collate, analyse and disseminate the road injury... -
Patient Care Report (PCR)
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient... -
Cardiac First Response Report (CFR Report)
The Cardiac First Response (CFR) report is a two-part patient record which is completed for every patient contact by a trained community first responder who attends an incident.... -
National Organ Procurement Service Data Previously National Organ...
All organ donations in the Republic of Ireland are coordinated through the National Organ Procurement Service in the ODTI. Ethical guidelines protect the interests of deceased... -
Patient Treatment Register (PTR)
The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date... -
National Spinal Injuries Unit
This is a register for all Spinal patients referred for consultation/ admission to the Mater Hospital. It uses Patient Advocate Tracking System (PATS) software.... -
The Irish Atopic Eczema Systemic Therapy Register (ASTAR)
ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-... -
Global Registry of Alopecia Areata Disease Severity and treatment Safety -...
GRASS-Ireland is an observational study collecting and analysing the data of adults and children with Alopecia Areata (AA) in Ireland over their lifetime. As an encounter-based... -
BowelScreen (The National Bowel Screening Programme) Previously Bowelscreen...
BowelScreen maintains a population register containing demographic data of eligible men and women aged 59 to 70 for the purposes of screening. It also contains data so that men... -
Perinatal Mortality National Clinical Audit Previously Perinatal Mortality...
Designated perinatal mortality data coordinators within all maternity units collate and submit data on all perinatal deaths occurring in their unit to the NPEC using a specific,... -
Neonatal Therapeutic Hypothermia Audit
For the national neonatal TH review, medical records are the primary source of information. Data were collected on site in the 19 maternity units/hospitals and neonatal... -
Major Trauma Audit (MTA)
The Major Trauma Audit (MTA) will provide a framework for hospitals to collect standardised data on patient injury, care processes and patient outcomes. The National Office of... -
Irish National Audit of Stroke (INAAS)
The Irish National Audit of Stroke is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for... -
Irish Hip Fracture Database (IHFD)
The Irish Hip Fracture Database (IHFD) is a web based system that uses the HIPE (Hospital In-patient Enquiry) portal infrastructure. It audits care standards and outcomes for... -
Health Atlas Ireland
The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses... -
Out of Hospital Cardiac Arrest Register (OHCAR)
A project to set up an Irish Out-of-Hospital Cardiac Arrest Register (OHCAR) was established in November 2007 in accordance with the recommendations of the Report of the Task...