Irish Prostate Cancer Registry of Ireland (IPCOR)

Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment.

Purpose: To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate cancer in Ireland. The data is used to generate reports and scientific publications for the public, researchers, clinicians, hospitals and National Cancer Control Programme on prostate cancer care in Ireland.

Coverage: National. The data was collected from 16 hospitals, 9 public and 7 private hospitals.

The collection began in February 2016 and was completed in January 2020.

Data and Resources

This dataset has no data

Additional Info

Field Value
Contact points
Contact point 1
URI
Name
UCD IPCOR
Email
data@ucd-ipcor.ie
Identifier
Publisher
Publisher 1
URI
Name
UCD IPCOR
Email
URL
Type
http://purl.org/adms/publishertype/NationalAuthority
Identifier
Creator
Homepage
Landing page
Release date January 1, 2016
Modification date February 25, 2024
Version
Version notes
Identifier NDC-0073
Frequency http://publications.europa.eu/resource/authority/frequency/MONTHLY
Provenance

Research officers employed by IPCOR through the National Cancer Registry Ireland register men in 16 hospitals across Ireland and collect the IPCOR clinical dataset. Eligible men are then contacted by the National Cancer Registry Ireland on behalf of IPCOR and asked to complete quality of life questionnaires before their treatment begins. Clinical follow up data was collected annually. Up to three years follow up data was collected.
Type
Temporal coverage
Temporal coverage 1
Start
January 1, 2016
End
September 13, 2026
Temporal resolution
Spatial coverage
Spatial coverage 1
URI
http://publications.europa.eu/resource/authority/country/IRL
Label
Ireland
Geometry
Bounding Box
Centroid
Spatial resolution in meters
Access rights http://publications.europa.eu/resource/authority/access-right/RESTRICTED
Other identifier
Theme
  1. http://publications.europa.eu/resource/authority/data-theme/HEAL
Language
  1. http://publications.europa.eu/resource/authority/language/ENG
Documentation
Conforms to
Is referenced by
Analytics
Applicable legislation
Has version
Code values
Coding system
Purpose
Health category
  1. http://health.europa.eu/ehds/category/ehr
  2. http://health.europa.eu/ehds/category/public-health
Health theme
  1. http://health.europa.eu/theme/infectious-disease
  2. http://health.europa.eu/theme/chronic-disease
Legal basis
Minimum typical age 0
Maximum typical age 65
Number of records 238795
Number of records for unique individuals. 36010
Personal data
Publisher note
Publisher type
Trusted Data Holder
Population coverage
Retention period
Health data access body
Qualified relation
Provenance Activity
URI
Qualified Attribution
Quality annotations