Cleft Database Previously National Cleft Database

The National Cleft Database enables the stakeholders to monitor the frequency and incidence of cleft in Ireland. It facilitates audit, research and reporting on the quality of cleft care. It supports planning, development and coordination of multidisciplinary services across hospitals and community services. The cleft database incorporates the minimum records required to comply with the audit requirements as stipulated by Eurocran for Cleft Lip and Palate for children. Statistical information on an annual basis can be used for benchmarking purposes within the Craniofacial Society of Great Britain and Ireland.

Purpose: The purpose is to gather centralised information on children or adults who present with cleft lip and/or palate which aids delivery of follow-up care, audit and research.

Coverage: National — participation is voluntary. Cleft is a lifelong condition and data collection starts from antenatal referral and is maintained throughout life with patient consent.

Data and Resources

This dataset has no data

Additional Info

Field Value
Contact points
Contact point 1
URI
Name
Dublin Cleft Centre
Email
data@dublin-cleft-centre.ie
Identifier
Publisher
Publisher 1
URI
Name
Dublin Cleft Centre
Email
URL
Type
http://purl.org/adms/publishertype/NationalAuthority
Identifier
Creator
Homepage
Landing page
Release date January 1, 2002
Modification date May 30, 2025
Version
Version notes
Identifier NDC-0017
Frequency http://publications.europa.eu/resource/authority/frequency/ANNUAL
Provenance

The data is compiled from several sources i.e. the cleft database registration pro forma, healthcare records, hospital patient registrations system (IPMS) and audit records such as patients completed Cleft Q questionnaires and records from each discipline of the multidisciplinary cleft care team.

Type
Temporal coverage
Temporal coverage 1
Start
January 1, 2002
End
October 13, 2025
Temporal resolution
Spatial coverage
Spatial coverage 1
URI
http://publications.europa.eu/resource/authority/country/IRL
Label
Ireland
Geometry
Bounding Box
Centroid
Spatial resolution in meters
Access rights http://publications.europa.eu/resource/authority/access-right/RESTRICTED
Other identifier
Theme
  1. http://publications.europa.eu/resource/authority/data-theme/HEAL
Language
  1. http://publications.europa.eu/resource/authority/language/ENG
Documentation
Conforms to
Is referenced by
Analytics
Applicable legislation
Has version
Code values
Coding system
Purpose
Health category
  1. http://health.europa.eu/ehds/category/public-health
  2. http://health.europa.eu/ehds/category/registries
Health theme
  1. http://health.europa.eu/theme/public-health
  2. http://health.europa.eu/theme/chronic-disease
Legal basis
Minimum typical age 18
Maximum typical age 75
Number of records 1178261
Number of records for unique individuals. 118715
Personal data
Publisher note
Publisher type
Trusted Data Holder
Population coverage
Retention period
Health data access body
Qualified relation
Provenance Activity
URI
Qualified Attribution
Quality annotations