National Hepatitis C Database

Database of persons infected with hepatitis C through the administration of blood and blood products in Ireland. Objectives of database

 To follow the natural history of infection in this group of people  To evaluate the impact of various host factors on the progression of the disease  To evaluate the outcomes of treatment To monitor the uptake of services  To provide information for the planning and evaluation of health services  To serve as a resource for future research into hepatitis C.

Purpose: In scope: To follow the natural and treated history of hepatitis C in people infected through blood and blood products administered in Ireland and to evaluate the impact of various host and virus factors on disease progression.

Coverage: Consenting patients, and patients who have died, 77% of eligible patients. National data collection, initially carried out annually, subsequently moved to periodic rounds of data collection (once every 2-4 years). Most recent data collection was 2018.

Data and Resources

This dataset has no data

Additional Info

Field Value
Contact points
Contact point 1
URI
Name
Health Protection Surveillance Centre
Email
data@health-protection-su.ie
Identifier
Publisher
Publisher 1
URI
Name
Health Protection Surveillance Centre
Email
URL
Type
http://purl.org/adms/publishertype/NationalAuthority
Identifier
Creator
Homepage
Landing page
Release date January 1, 2005
Modification date August 27, 2023
Version
Version notes
Identifier NDC-0088
Frequency http://publications.europa.eu/resource/authority/frequency/MONTHLY
Provenance

Data collected from medical records in Specialist Hepatology units across the country by a HPSC Research Nurse. Consent is required for all living patients.

Data were initially collected annually, but subsequently changed to periodically. The most recent period was for data from 2014 to the end of 2017 (covering a 4-year time period).

Type
Temporal coverage
Temporal coverage 1
Start
January 1, 2005
End
January 22, 2024
Temporal resolution
Spatial coverage
Spatial coverage 1
URI
http://publications.europa.eu/resource/authority/country/IRL
Label
Ireland
Geometry
Bounding Box
Centroid
Spatial resolution in meters
Access rights http://publications.europa.eu/resource/authority/access-right/NON_PUBLIC
Other identifier
Theme
  1. http://publications.europa.eu/resource/authority/data-theme/HEAL
Language
  1. http://publications.europa.eu/resource/authority/language/ENG
Documentation
Conforms to
Is referenced by
Analytics
Applicable legislation
Has version
Code values
Coding system
Purpose
Health category
  1. http://health.europa.eu/ehds/category/ehr
Health theme
  1. http://health.europa.eu/theme/public-health
Legal basis
Minimum typical age 15
Maximum typical age 75
Number of records 977981
Number of records for unique individuals. 293892
Personal data
Publisher note
Publisher type
Trusted Data Holder
Population coverage
Retention period
Health data access body
Qualified relation
Provenance Activity
URI
Qualified Attribution
Quality annotations