Datasets

• World Health Organization Global Health Observatory Previously WHO Global...

  The Global Health Observatory (GHO) is WHO’s portal providing access to data and analyses for monitoring the global health situation. It provides critical data and analyses for...

• European Health for All family of databases

  HFA is a central database of independent, comparable and up-to-date basic health statistics. It has been a key source of information on health in the European Region since WHO/...

• National Kidney Disease Surveillance System (NKDSS) and Quality Assurance...

  The NKDSS is one of the largest linked longitudinal surveillance systems in Ireland. It captures both regional-level data from laboratory and regional HIPE systems and links...

• Lifeways Cross-Generation Cohort Study

  Lifeways is a unique cohort study, designed to capture Irish longitudinal life-course data, by recruiting three generations of the same family. Participants, who are essentially...

• Irish Prostate Cancer Registry of Ireland (IPCOR)

  Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. Purpose: To conduct a unique, prospective,...

• Tusla - Performance and Activity Datasets

  Datasets of key performance and activity metrics and indicators defined for Tusla services as follows: - Child Protection and Welfare Services; - Alternative Care Services...

• Irish National Rare Kidney Disease Registry

  Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of...

• TILDA- The Irish Longitudinal Study on Ageing

  TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years....

• European School Survey Project on Alcohol and Other Drugs (ESPAD)

  Principal source of data on substance use among 15-16 year olds in Ireland, and their gaming, gambling and social media use. Purpose: ESPAD is a collaborative...

• National Incident Management System (NIMS)

  National Incident Management System (NIMS) is the principal source of national data on incident activity for the Irish health and social care service. It has been designated as...

• National Thoracic Surgery Outcomes Data previously included under Cardiac...

  This is a register for all patients who attend Galway University Hospital and undergo thoracic surgery. Purpose: To measure the quality of care of adult...

• Road Fatalities and Injury Collision Statistics

  Principal source of data and information on fatal and injury collisions on Irish roads. Purpose: To collect, collate, analyse and disseminate the road injury...

• Irish Biologic Therapies Register* (2014 template)

  This register collects data on all patients attending the rheumatology service who receive biologic therapies (predominantly anti-TNF therapies). Purpose: To...

• Patient Care Report (PCR)

  The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient...

• Cardiac First Response Report (CFR Report)

  The Cardiac First Response (CFR) report is a two-part patient record which is completed for every patient contact by a trained community first responder who attends an incident....

• Ambulatory Care Report (ACR)

  The ACR is the principal source for patient data captured at events. Purpose: To collect Event data on the patient who primarily requires first-aid and capture...

• National Organ Procurement Service Data Previously National Organ...

  All organ donations in the Republic of Ireland are coordinated through the National Organ Procurement Service in the ODTI. Ethical guidelines protect the interests of deceased...

• Organisation for Economic Co-operation and Development (OCED) Health Data*...

  OECD Health Data, maintained by the OECD, enables analyses and lessons to be drawn from comparisons of the healthcare systems of the 35 member states. Purpose:...

• Patient Treatment Register (PTR)

  The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date...

• National Self-Harm Registry Ireland (NSHRI) Previously National Self-Harm...

  The NSHRI is a national system of population monitoring for the occurrence of self-harm in Ireland. Purpose: The NSHRI is a national surveillance system which...

• National Spinal Injuries Unit

  This is a register for all Spinal patients referred for consultation/ admission to the Mater Hospital. It uses Patient Advocate Tracking System (PATS) software....

• The Irish Atopic Eczema Systemic Therapy Register (ASTAR)

  ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-...

• Irish Epidermolysis Bullosa (EB) Registry

  The Irish EB registry is an observational study of the EB patient population in Ireland recently launched by NISR. It is being run at Our Lady's Children's Hospital Crumlin and...

• Global Registry of Alopecia Areata Disease Severity and treatment Safety -...

  GRASS-Ireland is an observational study collecting and analysing the data of adults and children with Alopecia Areata (AA) in Ireland over their lifetime. As an encounter-based...

• Diabetic RetinaScreen (The National Diabetic Retinol Screening Programme)...

  Diabetic RetinaScreen maintains a population register containing demographic data of the eligible people diagnosed with Type 1 or Type 2 Diabetes aged 12 years and over for the...

• CervicalCheck (The National Cervical Screening Programme) CervicalCheck...

  CervicalCheck maintains a population register containing demographic data of eligible women and people with a cervix aged 25 to 65 for the purposes of screening. The screening...

• BreastCheck (The National Breast Screening Programme) Previously BreastCheck...

  BreastCheck is a Government funded programme providing breast screening to women through a network of four static centres and a number of mobile units. Screening is offered to...

• BowelScreen (The National Bowel Screening Programme) Previously Bowelscreen...

  BowelScreen maintains a population register containing demographic data of eligible men and women aged 59 to 70 for the purposes of screening. It also contains data so that men...

• Very Low Birth Weight Infants in the Republic of Ireland

  Hospitals submit their data to the Vermont Oxford Network. The VON returns the data on the infants born in the Republic of Ireland to NPEC and this centre subsequently analyses...

• National Maternity data- Robson Ten Group Classification system (TGCS)

  Designated data coordinators within all maternity units collate and submit data on Robson TGCS to the NPEC. Purpose: The Robson Ten Group Classification System...

• Planned Home Birth in Ireland Audit

  Self Employed Community Midwives (SECMs) in Ireland provide a home birth service on behalf of the Health Service Executive (HSE). Maternity records of midwifery care provided...

• Perinatal Mortality National Clinical Audit Previously Perinatal Mortality...

  Designated perinatal mortality data coordinators within all maternity units collate and submit data on all perinatal deaths occurring in their unit to the NPEC using a specific,...

• Neonatal Therapeutic Hypothermia Audit

  For the national neonatal TH review, medical records are the primary source of information. Data were collected on site in the 19 maternity units/hospitals and neonatal...

• National Audit of Severe Maternal Morbidity (Severe Maternal Morbidity Audit)

  Designated severe maternal morbidity coordinators within all maternity units collate and submit data on women experiencing specific severe maternal morbidities and /or who...

• National Paediatric Mortality Register (NPMR)

  The Paediatric Mortality Register collects and analyses data on all deaths in children <16yrs nationally. Reports provide accurate data on the incidence of all paediatric...

• National Audit of Hospital Mortality (NAHM)

  In-hospital mortality patterns have been used internationally as one indicator of the quality of care. While there are a number of similar ways of doing this, the standardised...

• Major Trauma Audit (MTA)

  The Major Trauma Audit (MTA) will provide a framework for hospitals to collect standardised data on patient injury, care processes and patient outcomes. The National Office of...

• Irish Paediatric Critical Care Audit (IPCCA)

  This audit provides a complete account of activity and outcomes in all paediatric intensive care units providing critical care to children in the ROI. In addition to data from...

• Irish National Orthopaedic Register (INOR)

  INOR is an electronic point of care system, designed to collect demographic, clinical and implant component data on patients admitted to hospital for primary and revision...

• Irish National Intensive Care Unit (ICU) Audit Previously National Intensive...

  National Intensive Care Audit is a computer-based system designed to collect demographic, clinical and outcome details on admissions to ICU’s, in hospitals nationally....

• Irish National Audit of Stroke (INAAS)

  The Irish National Audit of Stroke is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for...

• Irish Hip Fracture Database (IHFD)

  The Irish Hip Fracture Database (IHFD) is a web based system that uses the HIPE (Hospital In-patient Enquiry) portal infrastructure. It audits care standards and outcomes for...

• Irish Heart Attack Audit (IHAA)

  The Irish Heart Attack Audit reports on data from the Heartbeat portal which is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards...

• Intensive Care Unit- Bed Information System (ICU-BIS)

  Data collected by ICU-BIS falls into two categories; ICU occupancy data and COVID-19 specific patient data. ICU occupancy data; Total beds, Staffed /Open beds, occupied beds,...

• Irish Motor Neurone Disease Register

  The Irish MND register includes all known patients diagnosed with MND each year. It dates back to 1994 and it now has clinical information from over 2,300 patients. On average...

• Health Atlas Ireland

  The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses...

• National Haemophilia Register

  Cloud based National electronic record for all people with haemophilia and other related bleeding disorders. Interfaced to St James’s Hospital Patient Administration System/EPR...

• National Cancer Registry Ireland (NCRI)

  The National Cancer Registry has been collecting comprehensive information on cancer and related tumours for the resident population of the Republic of Ireland since 1994. The...

• National Oncology Drugs Management System

  The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme is the Oncology Drugs Management...

• Out of Hospital Cardiac Arrest Register (OHCAR)

  A project to set up an Irish Out-of-Hospital Cardiac Arrest Register (OHCAR) was established in November 2007 in accordance with the recommendations of the Report of the Task...